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rachy

leg brace update .. arrghhh!

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rachy

Went to see osteopath today to get brace fitted for foot drop but she looks at my leg/foot and told me i need a special brace fitted as my foot is turning inwards from when i had that spasticity back last year .. she told me i should have been refered back then :blush3: so now i got more complications .. she also mentioned my big toe being disjointed which neuro mention at the start of all this grrrr!!! Plus she wants me to be seen by a specialist for my circulation as my foot and leg is swollen and blue ..anyways i have to wait a further 3-4 weeks to have it made . not happy bunny :lolbash:

 

I just hope i have better luck with my lumbar puncture tomoz *shakes fist*


.....................................

 

Rachy xx

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Hezza

How frustrating Rachy! Will have my fingers crossed for you tomorrow with the LP :lolbash:


Life is short. Eat dessert first. Jacques Torres

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clare

arrrr good luck hun :lolbash:

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Gaynor

Mm...that's a pain in the a**.

 

Anyway get tomorrow over with first and all the best. Let us know (when you're ready) how it went x

 

Fingers crossed it's a 'good' one :lolbash:

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Vegged Out
Shirl

We'll be thinking about you Rachy but, as we always say, please DO NOT come to the PC until you have followed all the rules! As written (by me) on other posts here, they are:

 

You need to be fully aware what will be happening and how to rest properly afterwards so that the effects are minimised -

  • you need to be in a darkened room
  • lie flat for at least 8 hours, preferably more
  • drink plenty of water to replenish the small amount of cerebral fluid you've lost

Pre-warned is fore-armed, I think. I really wish you well Rachy but please REST well afterwards and don't think about us lot until you have recovered.

 

Then you can add your experience to the forum.



Shirley  "one day at a time"

 

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lucky

What sort of brace are you having done - Ive just been through it.

 

Lucy

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rachy

step-smart_VSA.JPG

 

It will stop me draggin my foot from the ankle :winkgrin:

 

Tomorrow Im having it fitted FINALLY!! :lolbash:

 

NO MORE SCUFFED SHOES !!!!!!


.....................................

 

Rachy xx

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colmmc
step-smart_VSA.JPG

 

It will stop me draggin my foot from the ankle :winkgrin:

 

Tomorrow Im having it fitted FINALLY!! :lolbash:

 

NO MORE SCUFFED SHOES !!!!!!

 

hi

 

just seen your post

Ive had one like that and imo this is much better

I posted this last year when i got it

and now you can deff get them on the NHS

CHEERS

COLM

 

Hi

I want to let you all know about a device I have had for about 2 weeks,

and its great!I first came across it at MS life in Manchester in the summer

and after a lot of phone calls, visits to my GP ,Physio ,hosp trust,ect

I have got it through the NHS. Well its wonderfull, ive not tripped since i got it

well worth a look if Footdrop is a problem for you.heres the web site.

http://www.odstockmedical.com/PatientsSite/Home.html

keep on walking!!!!!!!!!!!

Colm

 

Still not fallen !!!!!!!!!!!!!!

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rachy

Cheers huni ive ben looking at these and thought i had to buy them, didnt realise could get them on NHS , I will be having a chat with my Physio for sure !!

 

Thanks again

 

Rachy x


.....................................

 

Rachy xx

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Hezza

Hope the fitting goes well Rachy :winkgrin:


Life is short. Eat dessert first. Jacques Torres

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lucky
Went to see osteopath today to get brace fitted for foot drop but she looks at my leg/foot and told me i need a special brace fitted as my foot is turning inwards from when i had that spasticity back last year .. she told me i should have been refered back then :lolbash: so now i got more complications .. she also mentioned my big toe being disjointed which neuro mention at the start of all this grrrr!!! Plus she wants me to be seen by a specialist for my circulation as my foot and leg is swollen and blue ..anyways i have to wait a further 3-4 weeks to have it made . not happy bunny :winkgrin:

 

I just hope i have better luck with my lumbar puncture tomoz *shakes fist*

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lucky

Hi Ranchy

Thanks for your reply - The brace looks great and as things go stylish.

My problem was ankles went over so far I was standing on them. I was given a plastic white brace for my right foot and then another one which was hinged. Anyhow all this was wasted time in which I could have been walking and in which time my left foot went over too.

Anyhow heres is what I wanted to say - I got a new consultant and said to him "do people with MS ever have special boots made" He found out for me and made the appointment.

The boots were made and a fitting done but still the ankle turned over - Back they went for extra leather with a ankle strap for extra support. Another fitting and still ankle went over so back they went and leg braces attached.

This process took 6months so what I trying to say is if you have this problem as severe as me ask your consultant before it goes too far. Get the boots.

I only wish I had known about the type Ranchy has and I am sure mine wouldn't have got so bad.

 

I am greatful for my comfy boots and don't care what they look like and hope to get going again.

 

Years ago I wore a FES machine which really works for dropped foot. Excuse different fonts funny fingers.

 

Lucky :winkgrin: Just off to the circus to see if they have a job.

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rachy

Cheers Lucky :winkgrin:

 

I have my brace yay! i seem to be able to walk but only with my crutches im too scared to try without just yet..

Its great not dragging my leg but its funny the way i walk as i cant lift from the knee very well.. im having to drag from the hip.

I also asked about the FES and she said they wont fund it and its


.....................................

 

Rachy xx

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colmmc
Cheers Lucky :winkgrin:

 

I have my brace yay! i seem to be able to walk but only with my crutches im too scared to try without just yet..

Its great not dragging my leg but its funny the way i walk as i cant lift from the knee very well.. im having to drag from the hip.

I also asked about the FES and she said they wont fund it and its

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colmmc

Found it..

 

NICE issues guidance on FES for dropped foot 30 January 2009

 

Functional Electrical Stimulation

 

NICE (the National Institute for Health and Clinical Excellence) has issued guidance that says FES (functional electrical stimulation) is safe and can be considered for use in the NHS as a treatment for dropped foot.

 

Dropped foot can occur when nerve messages to the leg are interrupted by damage to the brain or spinal cord. The foot or toes don't lift properly leading to problems walking and the risk of stumbling or falling. Existing treatments include physiotherapy or an ankle-foot splint.

 

FES uses electrodes attached to the skin to trigger the nerves causing the foot to lift properly. Research supported by the MS Trust showed that using FES can help improve walking speed and confidence and reduce fatigue.

 

The NICE guidance says that FES can be "offered routinely as a treatment option for people with drop foot caused by damage to the brain or spinal cord" if the doctor feels it is appropriate.

 

Pam Macfarlane, Chief Executive of the MS Trust said, "We welcome NICE's guidance on the use of FES, although it is disappointing that they haven't referred more specifically to MS. We would really encourage anyone who thinks they may benefit, to talk to their health professionals as this guidance should ensure devices will be funded by the NHS where they are needed and therefore many more people with MS who experience dropped foot will be able to benefit from this treatment."

 

Helen Yates, Chief Executive of the Multiple Sclerosis Resource Centre ( MSRC) said, "We are delighted at NICE's positive guidance on the use of FES where the problem has arisen through brain or spinal cord damage. MSRC have fully supported the use of FES for people with dropped foot problems as a result of their MS. The MS Trust's research confirmed what people with MS using the FES already knew, that this piece of equipment can prove immensely helpful in a number of ways."

 

 

Colm.

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Michelle

WTG Colm

 

Regards

 

Michelle :cheerleader3:

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lucky
Found it..

 

NICE issues guidance on FES for dropped foot 30 January 2009

 

Functional Electrical Stimulation

 

NICE (the National Institute for Health and Clinical Excellence) has issued guidance that says FES (functional electrical stimulation) is safe and can be considered for use in the NHS as a treatment for dropped foot.

 

Dropped foot can occur when nerve messages to the leg are interrupted by damage to the brain or spinal cord. The foot or toes don't lift properly leading to problems walking and the risk of stumbling or falling. Existing treatments include physiotherapy or an ankle-foot splint.

 

FES uses electrodes attached to the skin to trigger the nerves causing the foot to lift properly. Research supported by the MS Trust showed that using FES can help improve walking speed and confidence and reduce fatigue.

 

The NICE guidance says that FES can be "offered routinely as a treatment option for people with drop foot caused by damage to the brain or spinal cord" if the doctor feels it is appropriate.

 

Pam Macfarlane, Chief Executive of the MS Trust said, "We welcome NICE's guidance on the use of FES, although it is disappointing that they haven't referred more specifically to MS. We would really encourage anyone who thinks they may benefit, to talk to their health professionals as this guidance should ensure devices will be funded by the NHS where they are needed and therefore many more people with MS who experience dropped foot will be able to benefit from this treatment."

 

Helen Yates, Chief Executive of the Multiple Sclerosis Resource Centre ( MSRC) said, "We are delighted at NICE's positive guidance on the use of FES where the problem has arisen through brain or spinal cord damage. MSRC have fully supported the use of FES for people with dropped foot problems as a result of their MS. The MS Trust's research confirmed what people with MS using the FES already knew, that this piece of equipment can prove immensely helpful in a number of ways."

 

 

Colm.

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lucky
Hi again

 

Thats rubbish shes told you,The unit is about

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lucky

I had my fes years ago and it was definitely

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