My name is Scarlet and I am a year 12 student who was diagnosed with MS last October. Because I am in year 12 I have been offered the opportunity to complete an EPQ (extended project qualification) which is where I choose a topic that I am interested in to complete an independent project on. As MS has recently become a very big part of my life I thought that this would be the perfect opportunity to find out more about it.
I would love to hear your stories from your diagnosis to more recent. I am especially interested in all your thoughts and experiences with MS treatment and research and how it has impacted your prognosis and lifestyles.
I would love to hear from anyone who is willing to share, this doesn't mean you need to have MS, it can just be someone you know who has it. I am still interested in your side of the story. Please also urge others you know to get into contact with me because I would love to talk/interview as many people as possible. If you would like to remain anonymous in my project that is absolutely fine, I will only use the information you give me if I have your consent.
Got this from the MS Society , should be interesting
Don’t forget to tune in to BBC1 at 5.05pm today to hear Jack Osbourne talk about living with MS for the first time on UK TV.
The TV personality found out he had MS in 2012 and describes diagnosis as his “scariest moment”.
Jack will be appealing for people to donate to the MS Society. The money we raise will be spent across the MS Society’s work, including our groundbreaking research programme, our helpline and our grants for family breaks and vital equipment.
Firstly apologies, have not been on here for quite a while, hope all is good with you all.
sorry if this is in the wrong place.
I am sat typing this, with the screen zoomed in to 400%, and a childs priate patch over my affected eye (right one)), my left eye is a lazy eye, so am not doing too well!( i can read all the letters onan eye test board with the right eye - well usually, with the left eye lucky if i can read the first two lines- this will give you an idea of where I am at the moment. The patch is to block out the 'hazy light' which is what this feels like.
My qyestion is, is does Optic N always take the same course - at the moment it is not as bad as it was the last time (16ish months ago). Last time over the course of 3/4 days i could see nothing at all it was just darkness, whereas this time itsbrighter, but still cant see very much.
Am thinking that the most likely answer is that there are no hard and fast rules to this, but would be interesting to hear other peoples experiences.
Thanks in advance for any replies,( i will attempt to read them, but may have to wait until my daughter gets in from school)), and scuze errors, sure there are a fair fe think i have a good excuse! x
I don't have MS but my mum does. Her symptoms have been getting progressively worse over the last few years and her consultant has just started her on Rebif injections.
Lately (over the last year) she has been saying things to people, mostly family members, that are really hurtful and seem totally out of character. Its like her brain is not connected to her mouth! It seems that she doesn't realise that she has said them and then can't understand why people refuse to come and see her or talk to her or are nasty to her. She is getting very upset about the way people have been treating her although when I'm told what she has said I wouldn't blame them for not wanting to go near her!
I am the peace keeper in the family and am at a loss about what to do. The situation is very tough as one of the family members involved is terminally ill and another member has mental health issues of their own!
I want to know if this could be part of her condition before I just wade in there all guns blazing and what if anything I could possibly do about it without hurting her feelings and making things worse.
This is litterally tearing a very close knit family apart.
Please help, any coments would be very much appreciated!
Today I went to see my physio who is an MS specialist. I was a bit dubious about whether to make the appointment because I am in the middle of a relapse and feel like total sh1te but decided that it might be better if she saw me at a low point.
She really is a lovely, understanding lady and so helpful. I only had two appointments with her before Christmas, so we had a good chat about what happened since I last saw her and what might have exacerbated the relapse (stress mostly). After testing my capabilities she gave me some new (gentle) exercises to do, and told me I am flat-footed so she'll refer me to podiatry for some insoles to help.
It was a revelation that the way we balance on our feet can make so much difference! I've been practising putting more pressure on the outside edge of my feet this afternoon and can feel my leg muscles stretching :D
Serves me right for buying 'ugg-type' slippers for Christmas and living in them all day for months!
Tomorrow I'm going out to get some 'house shoes'
I'm determined not to let ms have me, and I WILL keep as mobile as possible for as long as possible!
Never thought I'd say it, but long live physical terrorists
Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.
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