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megzy

im new please read i would love to talk to you all!

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megzy

hello guys,my name is megan.

I appreciate your patience in reading my post so thanks.firstly can i just say how happy i am that everyone on here seems so positive and is so supportive .I always assumed the worst with ms.I know some people with ms and i hear alot of negative stories about how its a death sentence this forum has took the fear away for me and shined a diffrent light on it.I have had some symptoms for a while and have surprised myself that im speeking out ive tried to ignore it but i cant i now realise its not in my head and its not a flair up of my life long anxiety.I have twitching alllllll the time every few seconds somewhere over my body,a thudding in my ear ,severe fatigue and general weakness.

 

I apoligise because i really dont want to seem ignorant but i refuse point blank to go to the docs,im so embarassed everytime i go they know of my anxiety so as u can imagine my mental health rules out anything physically i mite have wrong.I see the kind of advice you all give to newcomers im really hoping someone might just be able to talk to me.Im so confused ive tried to do some research and i thought ms only occured in people between ages of 20 and 30 sorry if this comes across as ignorant to you because i dont know the fact but thats what i read and also that people in the uk are more at risk and people who have ms in ther families.im 20 and im scared,ino i have to go to the docs but i really am resiliant to going which is stupid.This is so irnoic as im studying to be a nurse.career out the window depending on the truth.sorry im just overwhelmed by this forum in a good sense but.any help would be great .take care all.x

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Christina

Hi Megan

 

Welcome, glad you found us. You're right that MS is predominantly a younger person's disease but the term ' young' incorporates people up to their fifties, incredible as that may seem! Also people older than 50 do still get it but not so often. You will only know if you've got it by starting the ball rolling with a visit to your GP, who will hopefully take you seriously and arrange a referral to a neuro for further testing. Just because you're anxious doesn't mean you can't have other valid illness alongside, but in order to progress with finding out what's happening you have to talk to someone who can access the investigations you will need.

 

You may already be aware there are other illnesses that mimic MS and so it's important not to jump the gun with self-diagnosing. The symptoms you describe could indicate a number of things, which is why you need to head to the doc and not worry yourself to death.

 

There's no need to consider your nursing career out the window with MS. Many people with MS continue to work and lead normal lives. I was a neuro nurse for several years before I had to retire, but I was able to continue for a number of years and I realise I must have had it whilst training, so don't write your career off so fast. MS is very variable and for some it's benign only giving minimal problems, however, others are affected with greater levels of disability it's true. It certainly isn't the death sentence that you may have worries about. There is a slightly increased risk of getting MS if there are people affected in your family. Usually it's higher if you have a sibling affected, but the risk is not that strong and many people get MS without having anyone in their family affected. MS does seem to affect more people in the northern hemisphere, which is thought to be due to lack of Vitamin D in childhood. You probably know Vit D is gained from exposure to sunlight.

 

I'm sure we'll do our best to answer any further questions you have Megan, but please reconsider a visit to the doctor for some further investigations or reassurance.

 

Take care

Chris xx


Not waiting for the storm to pass, but learning to dance in the rain ....

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Dianni

Hi Megan.

 

I can only repeat what Chris has already said. There are so many illness that mimic MS and in turn, MS mimics many more. It soundsfrom your post as though you are really frightened at the moment, as anyone would be when strange sensations and symptoms appear.

 

I appreciate your reluctance to discuss what's happening to you with doctors, but, as Chris says, in all honesty, it really is the only way you will get any answers.

 

In my humble opinion, and please don;t for one moment think I am saying this is the case, but having a fair amount of experience of mental ill health, both professionally and personally, even if it is anxiety, your symptoms need treatment. You also need to remember because you have anxiety doesn't rule out other causes and you have a right to have your concerns taken seriously.

 

Stick around and we will do our very best to help and support you to get the answers.

 

Hugs

Di

xxx

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Hezza

Hi Megan,

:welcome: to the forum.

 

Christina and Di have given you great advice. Yes, MS is most commonly diagnosed in people in their 20's & 30's (I was 29 when I was diagnosed) but as Christina has said this isn't a concrete rule.

 

As the others have said the only way you will get answers is by going to see your doctor. Perhaps you could take someone along to the appointment as moral support? or book a double appointment so that you don't feel so rushed. You know your body best and you say...

I have had some symptoms for a while and have surprised myself that im speeking out ive tried to ignore it but i cant i now realise its not in my head and its not a flair up of my life long anxiety.

 

So if the doctor says I think it is anxiety say "I think this is different" and ask for some tests or a referral for further investigation.

 

MS isn't always fun but, certainly for me, it's not a miserable death sentence either. I can honestly say that having had to make some big changes in my life - professionally and personally - since my diagnosis I have a much better balance in my life, am persuing things that I really want to do and my relationships with close family and friends have improved. Of course there are days when I am miserable and on those days the amazing support from this forum helps to get me through :kisslips:

 

Take care hon and keep in touch :hearts_circle:


Life is short. Eat dessert first. Jacques Torres

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Michelle

Hello Megan and Welcome

 

 

Regards

 

 

Michelle :hearts_circle:

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tdkstratus

Hi Megan

 

I totally understand what you are going through. I was totally at my wits end when my sight started going funny 3 and a half years ago. I thought it was something wrong with my glasses so I went to the optician who then referred me to the Eye clinic. To cut the long story short, it happened again March this year and my eye specialist put me forward for tests for MS ( MRI, Lumbar puncture, etc). Got my diagnosis in June this year and I'm so glad I did as everything started to make sense.

 

I can't give you any more advice than what's been posted here already. If you every need to talk, just post here and we'll answer your questions and fears as best we can.

 

Lots of love


Terri

 

Ohana - Where nobody gets left behind or forgotten

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Tania B

Hello Megan and welcome. As you have probably already found, posting messages here and talking to the lovely people does help. You are not alone.

 

Tania

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Sleepy
Scully

Hello Megan,

 

As per all the previous posts, I can only echo what has already been said.

 

Book a proper appointment with your GP, take a friend with you. It's great advice, you need to know, whatever the case.

 

The people on this forum helped me along this tricky road, and the support is so supportive and reassuring. I followed advice, from the members here, who have an enormous amount of experience, it sure helps, whatever the diagnosis may be.

 

Try and stay calm, positive, look forward, and get, with yur GP's help, to the bottom of it, once and for all.

 

Best Wishes

 

Scully

x


They are not brain lesions..........they are just bright ideas

 

"The truth is out there"

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Heste

Hi Megan,

 

Welcome to the forum.

 

I had a similar problem to you in that I suffered from stress and depression and so whenever I was a doctor they always seemed to assume that whatever I presented (unless it was clearly broken) was in my head. I must admit they were right on several occasions. I had such severe chest pains and I was sure they must be missing something.

 

When I started tripping up and my legs were feeling heavy I decided I had to do something about it. I got an appointment with a different doctor but my experiences with my GP caused me to really look at myself first and prepare what it was I was going to say and present to him. It was not until I did this that I realised how just how bad my legs were. The most clear problem was that I couldn't lift my toes or bend my ankle upwards. I couldnt raise my legs very high either. Having identified these clear physical issues I was then confident to talk to him and ask him what was happening. When I made the appointment I was just going to say my legs felt heavy and I trip alot. Perhaps he would have looked at my records and written it off as another "in his head thing". As it was, having shown him it there was a physical symptom, he sent me to a physio and when that showed no physical cause he sent me to a Neuro. This lead to a diagnosis of primary progressive MS.

 

I had learned over time to live with fatigue. So much so that didnt think to mention it as a symptom. I just felt permanently tried and like I was just getting old. Having got a Dx of PPMS I can see this fatigue for what it is.

 

I think I have had MS for a long time before I was diagnosed ( Dxed) but many of the symptoms were masked by the depression.

 

I'm afraid I will have to agree with the others and say you should give your docs another chance. I dont know if you have the option to see a different doctor but that might help.

 

If you really wont see a doctor then you leave yourself very few options. All you can do is try to live as healthy a lifestyle as you can, improve your diet and wait for something to stop working that forces you to see a doc.

 

If we have not convinced you to see your doctor then just keep talking to us. I have found it has helped me a great deal to write about my symptoms as this helps get it all clear in my head. Then it helps to get the opinions of others, however, we are not medically qualified and can only offer advice based on our experence and what we hope is common sence.

 

All the best,

 

John :hearts_circle:

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megzy

You are all such and insperation to me i honestly cant explain it.I fuelled the fear by keeping quite i realise that now.Keeping things in perspective is key and actually talking to you amazing people who have this devils disease and your spirit and strong energy seriosly cuts of the supply of worry fuel as i call it.I will be staying here for a long time.I honestly cant thank you all enough for taking time to reply to my message ,i feared you might be angry that someone like me who has no idea what its like to live with ms would come on here and declare i think i mimic some symptoms but that doesnt phase any of you.I hope you dont mind me saying this but whatever the outcome of my symptoms i will use this forum maybe for my nursing studies as a way to educate my other student friends on this illness and tell them that the people who have it will not be broken by it.i love you all.xxx

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DizzyDora

Hi Megan, a belated :hearts_circle: to the board.

 

Hugz DD xx

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gillshutt

Hi Megan and welcome, sorry I missed you earlier. Everyone has given great advice so just sending :hearts_circle:

 

Gill x


Why me?

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Hezza

Hi again Megan,

I just wanted to say thank you for your lovely words & that I loved the phrase that you ended your post with:

 

...and tell them that the people who have it will not be broken by it...

 

That rings so true and not just for those of us with a firm diagnosis. Thanks again & take care hon :hearts_circle:


Life is short. Eat dessert first. Jacques Torres

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Panda

Hi Megan,

Like you i'm new here and still don't know what is causing my symptoms.

 

Try to be brave & see your gp. Once you've been once any follow up appointments will be easier for you.

 

Stay open minded and don't expect a quick answer. (There's me giving advise & I'm desperate to know whats wrong with me:hearts_circle: )

 

I hate going to the doctor, I'm sure he thinks that mad women is back. I usually end up in tears because of frustration in not getting answers more than anything else. I start off well and then run out of fighting power. Im usually worse if they're nice to me:hugs2:

 

Good luck, it's usually not as bad as you think.

 

Take care

Clare

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