Jump to content
The MS PEOPLE UK Forum
Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.
Scully

Completed DLA form

10 posts in this topic Last Reply

Recommended Posts

Sleepy
Scully

Hello All,

 

I have spent much of this week-end completely my DLA form. I was warned it was like War and Peace, and it was......although more war than peace I think !

 

I did it on several sessions, but, found it quite distressing to actually think about every task and write it down. Made me feel quite useless and near 90 years old.

 

My partner helped me, and we ventured out to test my walking speed ! Well that made me feel much better, getting over-taken on the sidewalk by grey haird old ladies who were carrying shopping bags !. Got home worked out the speed, and was even more dimayed to find that I fitted into the 'Very Slow' box. It's all very depressing.

 

I've posted the damned thing today. Postal strike looming, so I forked out a fiver to have it 'Next day delivery and signed for' I hope they don't lose it, I don't think I could face filling it in again !

 

I'd heard that it can take months to get a reply/decision from them.....and many are rejected..... :hearts: Rejected ?!?!? So fingers crossed.

 

Hope you are all as well as can be expected, even if it is a dull old day

 

Scully

x


They are not brain lesions..........they are just bright ideas

 

"The truth is out there"

Share this post


Link to post
Heste
but, found it quite distressing to actually think about every task and write it down. Made me feel quite useless and near 90 years old.

Well done,

 

Sounds like you got it about right. My wife was quite upset by mine at the time.

 

Did you keep a copy? hopefully you will not need a copy but you don't want to start from scratch. If they give you DLA for a limited period you do have to reapply when it expires and having a copy is useful then as the DWP (dept of war and peace) do not keep a copy.

 

Regards,

 

John :hearts:

Share this post


Link to post
Christina

Hi Scully

 

Well done for getting through DLA. Mine gets reviewed every 3 years and it's true it seems to have become more difficult to get the award in recent times. The form was changed a while back and gave you less room in the boxes to say what you wanted. I tend to type mine so I can get more in or attach a sheet. I hope you are successful but if not take it to appeal, I read these days lots of applications are turned down initially but that decision is often overturned on appeal.

 

Chris xx :hearts:


Not waiting for the storm to pass, but learning to dance in the rain ....

Share this post


Link to post
Sleepy
Scully

Thanks guys,

 

John - I didn't/couldn't take a copy, I don't have the facilities at home, and it would have meant a trip to the librabry to stand and do it. Will just keep fingers crossed I guess.

 

It seems bizarre, that a doctor/neuro/nurse, can all send in certificates to DWP stating why you are unwell and not fit for work.................only for some........****** (probably barely school age!) to decide that you are actually OK, and not hindered or disabled by this bloody disease ! staggering!

 

I will just wait now I guess, and, if they turn me down, I will go through another process.......it's so stressful to get what we should be able to get. I realsie it's to stop those who don't qualify, but, if you can barely walk without falling, with painful muscle spasms for more than a few metres............how can they say "Actually you are ok"?

 

I find the benefit system, on this my first shot at actually getting anything, despite putting into the coffers for some 30 odd years very wearing.

 

Scully

x


They are not brain lesions..........they are just bright ideas

 

"The truth is out there"

Share this post


Link to post
tdkstratus

Hi Scully

 

I am in the process of filling in the forms myself, after recommendations from the MS nurse and fellow colleagues. I took a practice print from the website first just so that I could have a look at the questions. Bloody Hell!!! War and peace sounds like a piece of cake compared to this lol. Hopefully i'll get it finished soon and sent off. Having to keep adding more to it (must remember to do that tonight) since symptoms keep appearing and losing my driver's licence (eye doc did a test and said it she were the dvla i wouldn've failed kinda sealed its fate)

 

Keep us posted on how it progresses.


Terri

 

Ohana - Where nobody gets left behind or forgotten

Share this post


Link to post
gingermagic

I have also just filled the dam thing in. It's been about two weeks now. As I remember it did resemble a James Joyce epic!

 

After sending it, someone recomended me to fill it in with proper advice. People who know the system, know the important triggers appently.

 

Did not keep a copy, will probably want to fill in from scratch if required anyway.

 

Did some one say dammed disease.......... :cowboy:


Billion year old carbon

Share this post


Link to post
goth n proud

Hi, I filled mine in weeks ago, regularly got letters tellin me that the hadn't got to making a decision and would let me know when they did, duh, if they spent more time makin the bloody decision instead of writin letters tellin me they hadn't done it yet it would take less time hey.

 

Anyhow, I have actually got the Doc comin to my house today to 'access' me, why he can't take the word of the neuro who states that i have demyelination n inflammation in my head, spine etc I don't know. Hey ho, guess theres a lot of blaggers out there and they have to weed them out.

 

PS Only one week to go til my neuro appointment with lumbar puncture results :)

 

Em :cowboy:

Share this post


Link to post
Christina

Good luck with that appt today Em.

 

I hope the doctor is sympathetic.

 

Chris x :cowboy:


Not waiting for the storm to pass, but learning to dance in the rain ....

Share this post


Link to post
Heste
why he can't take the word of the neuro who states that i have demyelination n inflammation in my head, spine etc I don't know.

As I am sure you will have discovered by now the doc is not coming to make sure you have the condition but to see how it affects you. They do have to weed out the blaggers but they also need to make sure that even the genuine ones are actually affected sufficiently to meet the criteria of the law. DLA is a legal question as much as it is a medical one. If this were not the case then DLA would be automatic with the DX.

 

I felt for the little girl that was on the news this week. They have just taken her DLA away dispite her only having half a leg. On the news they showed her dancing on one leg. They are going to appeal but I suspect the DWP will use the news report as evidence that she doesn't meet the legal criteria of DLA. Being on the news will give her public sympathy but I doubt that will help her with the DWP.

 

They dont always send a doctor out. I would like to know how it went and what you think of their assessment.

 

Regards,

 

John :cowboy:

Share this post


Link to post
Sleepy
Scully

Thank you John,

 

You have really shone a light I think for me.

 

This is my first visit to the benefit system, and, yes I know we are lucky to have it anyway, so many countries have zippo, unless you were heavily insured.

 

I have found the system depressing, difficult, and very wearing, BUT, reading your posts, it makes a little more sense now.

 

I guess there are many people with disabling conditions, who, through whatever means, are able to continue to live their lives, without too much trouble. And, there are others who, find everyday stuff very difficult indeed.

 

So, the assessments, despite my own frustrations and scepticisms, I now feel better about it all, from the point of view that they are only trying to make sure, that the ones that need some help, get it.

 

Your news story about the little girl is one, and then there are the guys that come home from war, and, because they are managing to climb mountains in aid of charity, are, I suppose, to all intent and purposes, 'managing to get around the difficulties', (which is very humbling).

 

I now understand, that the DWP, is very likey doing what they are meant to do, in making sure that a diagnosis is not quite enough, but it's how it affects daily living.

 

I feel better about the whole thing in fact now, so than you for showing a point of view that I hadn't thought of.

 

Scully

x


They are not brain lesions..........they are just bright ideas

 

"The truth is out there"

Share this post


Link to post

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Similar Topics

    • DLA claim form

      Can anyone give me some halpful advices about filling in a DLA form?   Please!

      in General Discussion about MS

    • Whohoo to my Slap Dash DLA Application form

      You may remember me talking about my 2 hour DLA application form that I did not fill in myself... I was not able to write and the chap at Dial House helped, but he had not long come out of hospital from an op on his right hand... I was soo frightened is was not good enough as soo many people seemed to take weeks to do a form... this was done in an hour an a half I think and the writing was much to be desired (not his fault).... so much so I tried to tidy bits of it up as I was concerned is was a little ruff.. so with my leftie I tried to dot some i's and cross some t's.. anyway... Oh my gosh.. I got it!!!.... I am sooo thrilled... it will make soo much difference to me.... I have also joined an agency for some temp work in the hope of just seeing how I go on just a few days a week... Told them I need a chilled sit down job. Maybe 1 day first.. I really want to try and be in the outside world again.... Appreciating i may not be the most flexible candidate... But i thought to try...Annnddd guess what I spoke to the poeple that I paid to do the Excercise to music course and they are letting me do the written part i didnt do free of charge.. I did the dancing bit back in jan...im not sure i will be able to dance.. Well i can hope things get better..mwe will see.... But at least i will have completed it once i do the theory... And have it under my belt as an achievement.... Luckily I paid for this in Dec to do it in Jan but i was not really that brill at the time and asked them to put it on the back burner... it was just too much.. I was not able to cope...it was weird... two weeks later I was in A&E and a few days after that I was told I had MS... so no surprise I could not handle it. I cannot believe how my luck is up..... Annnd there is more..... someone I met some time ago has got in touch... we were never an item... just special to each other, (very special I think) I guess we thought a lot of each other... but were both not emotionally available... circumstances etc....and now.... well... I don't know yet... but it is sooo lovely to hear from him.... Initially I was not going to tell him about the MS.... I didn't want him to run... but I guess if he is special he won't and if I am special there is another good reason for him not running.... his reply was... It will be harder than that to get rid of me.... she displays a big GRIN. :))   He told me to listen to this song... maybe others feel the same about someone and could share it to show they care.   http://www.youtube.com/watch?v=B8UeeIAJ0a0   Life is soooo much easier with some lightness.... it is amazing.... I am sooo going to project good, positive things.... it works.   x   I hope others are feeling good.... I read lots of things where my heart gets pulled on here.... part of me feels a wee bad for feeling sooo blessed right now..... hopefully I can share some hope around... sprinkle sprinkle my multi coloured dust.   xxx  

      in General Discussion about MS

    • ESA form causing upset

      Hi everyone, I hope everyone Ian feeling ok today. I've not been on for a while just been in a kind a daze lately. I was in hospital last week for tests and review. The psychologist has decided I need counselling, to see if that can help me to walk properly again.   I have applied for ESA and they have sent me another form to fill in about what's wrong with me and it is just upsetting me. I just get scared that I fill it in wrong, I forget dates and appointments and they want to know. But the thing that upsets me the most is I have to go over everything that is wrong with me and be reminded of everything I can't do. These forms really should come with a box of tissues.   Sorry for going on marianne xxx

      in General Discussion about MS

    • Tests all completed

      Hello All,     I hope you are all feeling as well as can be expected today.     OK, so I

      in General Discussion about MS

    • Lengthy Detailed Guides to filling in the DLA form

      The attached PDFs are full of excellent and detailed tips and guides on how to fill in the dreaded DLA form. They also include some of the pitfalls to avoid.   Highly recommended reading to help anyone with filling in the DLA form.   One is written by the National Association for Colitis and Crohn's disease, but just replace those entries with "MS" in many instances as, on the whole, the idea of the tips and guides is the same.   The NACC and BHAS ones appear identical on the whole but they each offer different or more tips in some areas.   In fact, all 4 of them offer different tips and suggestions.   I'd say it's well worth going out and buying a ream of paper and an ink cartridge and printing them all out and then highlighting and making separate notes about the bits that apply to you, so's not to get too lost in a sea of highlighted sheets of paper.   DLA_Guide_NACC.pdf DLA_Guide_Newcastle_gov.pdf DLA_Guide_BHAS.pdf MSSociety_Claiming_DLA_2011.pdf

      in General Discussion about MS

About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.


The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
×