Thank you for letting me join the forum.
Very quickly about me.....
I am Male, 44
Diagnosed with RRMS in 2009
Married with 2 kids
History of numbness and neuropathic pain - tried many things but nothing ever dents it
Getting a little worried about my future!!!
And so this is where my story begins. I am lucky, with the exception of constant pain for the last 12 years in my hands, a limited amount of balance issues and some reproductive problems, I feel like I have gotten off with my condition so far. I take Gilenya daily following a drug trial and things seem stable.
I am employed, I work full time in an active role, I am the only person working for the company that employs me based in the UK. I run up and down the UK, drive lots of miles, run around building sites, up ladders, into lofts and its a very physically demanding role. I havce never told my employer I have MS.
But....I have noticed a decline recently, not one that can be understood by many unless you have this condition but I am finding the physical side more and more demanding. I am feeling that my symptoms are getting worse and it will get to a point where I will feel I am putting myself and others in danger if I carry on.
My job is all I know and I am getting to the point where I need to consider whether I can do it or not. I am also considering registering myself as being disabled.
So I need to make a plan in life. What happens next? I know that unless I do the job I do with my current employer, there is no other job for me. I am their man in the UK and there is no desk job equivelent. All I know is the travelling and managing that I do. Also, I earn a good wage, very good, and if there are to be changes in my life then I dont want to scarifice my earning potential to do it. I have all those great things that a guy at my age has...mortgage etc.
I have done nothing so far, other than join this forum and tap into the experience of others whoi may have some sage advice or guidance from me.
I hope there is some help out there and I am also looking forward to helping others if I can!!!
Thanks in advance.
I've had MS for approx 12yrs and have been on the Dr Roy Swank Diet (plant based since I'm a vegan). This diet is AMAZING wish I had done it sooner! Back on topic, I requested to have prescription written for LDN (low dose naltrexone) but my neuro refused to wrtie it!!
This is disgusting IMO. I now have to find a GP and have him write it or another neuro to write it .I am done taking these highly toxic MS drugs and am doing the Dr Roy Swank or Dr John Dougall diet and wish to get on LDN ASAP!!!
Anyhone else have such a neuro that refuses to write LDN? This is totally unacceptbale and higly upsetting.
Since joining this forum (3-4 days ago?!) I decided to make a major change on the computer. :computer:
In my Outlook Express "Favourites" I had a folder called "Disability" :sad:
Have just changed that name to ABILITY. It's amazing the difference it's made
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