Hi all, if you were refused PIP by DWP and have not appealed i urge you to do so as MS is a life changing disease.
I applied June 2019 then appealed, last year Oct following my face to face assessment Sept. This was refused, i then appealed by Tribunal which took place July 2020 via telephone. A Doctor, Judge and a representative from DWP asked questions based on the what was reported up until the date of assessment (sept 2019) they did not want to hear about now.
Anyway, this was not a scary experience. In fact it was easier than the DWP assessment, they wanted to hear how the RRMS impacts on my day to day life.
The decision was upheld and i was awared PIP standard rate.
4x 2 points awared and 4 points awared fot mobility. Interestingly DWP scored me ZERO in all areas!!! I will be back dated from june 2019 and entitled to PIP until june 2022.
Be brave, fear nothing and make sure you stand up for MS by claming what you are entitled to. Do not be put off by a Tribunal. My opinion is DWP have no idea what they are assessing with MS, lack understanding to the hidden yet highly self limiting symptoms that do not fit nicely into their generalised tick box questions. DWP are likely to score people with ZERO like me, dont be put off... appeal with a smile! Surely living with MS is far harder than anything a Tribunal can throw at you. Good luck all.
My name is Scarlet and I am a year 12 student who was diagnosed with MS last October. Because I am in year 12 I have been offered the opportunity to complete an EPQ (extended project qualification) which is where I choose a topic that I am interested in to complete an independent project on. As MS has recently become a very big part of my life I thought that this would be the perfect opportunity to find out more about it.
I would love to hear your stories from your diagnosis to more recent. I am especially interested in all your thoughts and experiences with MS treatment and research and how it has impacted your prognosis and lifestyles.
I would love to hear from anyone who is willing to share, this doesn't mean you need to have MS, it can just be someone you know who has it. I am still interested in your side of the story. Please also urge others you know to get into contact with me because I would love to talk/interview as many people as possible. If you would like to remain anonymous in my project that is absolutely fine, I will only use the information you give me if I have your consent.
This looks very encouraging indeed !
Panorama episode concerning this looks like it's on ...
Can You Stop My Multiple Sclerosis? Panorama will be shown on BBC One on Monday 18 January at 8.30pm.
Now, this latest perspective on a quasi-cure/recovery brings up a new perspective, following Ms Wiggle's recent post in the main CCSVI thread - http://ms-people.com/forum/index.php?s=&am...ost&p=60497.
How many of us, who have had their lifes blighted in middle age or younger, could rebuild their career to accommodate the drop in income, if your benefits were stopped?
For, my part, I'm in my mid-50s and was allowed to retire early. So I have a private pension income, supplemented by the DLA. I'm comfortable in that I can pay all the bills and my wife works.
But, if I was miraculously more mobile, less-fatigued and continent, what would I do? I suppose B&Q might take me! But, I would now want to do more, see more and probably wouldn't be able to afford it!
So, here we have a scenario, we could find ourselves in a worse financial state, due to losing years of your career/pension contributions to MS. And we would then be destined to live the rest of our lives living hand to mouth!
And, we may have spent some of our retirement reserve to pay for this treatment, to benefit yourself. And to benefit the Government, who didn't really help you in the first place!
So, whilst a cure, or a physical recovery would be welcome, what would it mean? Could we recover, or more importantly finance, our restored life?
Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.
If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.
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