My name is Scarlet and I am a year 12 student who was diagnosed with MS last October. Because I am in year 12 I have been offered the opportunity to complete an EPQ (extended project qualification) which is where I choose a topic that I am interested in to complete an independent project on. As MS has recently become a very big part of my life I thought that this would be the perfect opportunity to find out more about it.
I would love to hear your stories from your diagnosis to more recent. I am especially interested in all your thoughts and experiences with MS treatment and research and how it has impacted your prognosis and lifestyles.
I would love to hear from anyone who is willing to share, this doesn't mean you need to have MS, it can just be someone you know who has it. I am still interested in your side of the story. Please also urge others you know to get into contact with me because I would love to talk/interview as many people as possible. If you would like to remain anonymous in my project that is absolutely fine, I will only use the information you give me if I have your consent.
Hello everyone I was beginning to feel that humour had vanished but feel happy to have found people who like to laugh as I do at this stupid condition. I am currently skidding around in the snow and look like everyone else when I fall over. I am currently trying to build up my core strength which may help with some of my balance issue (so I'm told). If you ever come across a determined looking lady getting up from her chair then immediately sitting down its me and YES that is one of my exercises it does wear me out but I will keep doing it .
not sure if im doin this right but i'll have a go, ive been diagnosed for 3 years and im fine, just little blips so im happy with that, it would be lovely to chat to other people who know what im talking about x
hello guys,my name is megan.
I appreciate your patience in reading my post so thanks.firstly can i just say how happy i am that everyone on here seems so positive and is so supportive .I always assumed the worst with ms.I know some people with ms and i hear alot of negative stories about how its a death sentence this forum has took the fear away for me and shined a diffrent light on it.I have had some symptoms for a while and have surprised myself that im speeking out ive tried to ignore it but i cant i now realise its not in my head and its not a flair up of my life long anxiety.I have twitching alllllll the time every few seconds somewhere over my body,a thudding in my ear ,severe fatigue and general weakness.
I apoligise because i really dont want to seem ignorant but i refuse point blank to go to the docs,im so embarassed everytime i go they know of my anxiety so as u can imagine my mental health rules out anything physically i mite have wrong.I see the kind of advice you all give to newcomers im really hoping someone might just be able to talk to me.Im so confused ive tried to do some research and i thought ms only occured in people between ages of 20 and 30 sorry if this comes across as ignorant to you because i dont know the fact but thats what i read and also that people in the uk are more at risk and people who have ms in ther families.im 20 and im scared,ino i have to go to the docs but i really am resiliant to going which is stupid.This is so irnoic as im studying to be a nurse.career out the window depending on the truth.sorry im just overwhelmed by this forum in a good sense but.any help would be great .take care all.x
Well this morning I went to see my neurologist for my 6 monthly appointment. I love him to bits, he is just so human and helpful.
When I first saw him in October 2003 he was very abrupt, said he could find nothing neurologically wrong with me, that in his opinion I was depressed (actually said, "you look depressed"!) and prescribed me Citalopram. Luckily for me at that time he did refer me for a VEP as I was having vision problems. I say luckily because that came back showing demyelination on my left optic nerve so he followed it up with a brain MRI which showed "areas of demyelination consistent with MS". This was all over a year ago and I have seen him 3 times since and he has changed from Mr Ogre to Mr Wonderful.
He has decided to take me off Amantadine and put meon Modafinil as the Amantadine doesn't appear to help my fatigue at all.
I bravely asked him if he could tell me more about my MRI scan and he couldn't have been nicer. Said he didn't actually have the scan with him but would make sure he had it for next time and we could go throug it together, but according to the report I had "multiple lesions in every area of my brain, particular the ventricular ........" (missed the last word). He did a thorough clinical examination (to compare how things had progressed in the last six months) and has arranged another appointment for December where he wrote on the note for the receptionist, "make sure that x-ray package is available".
So although not good news about the scan report I was quite happy with my consultation and am looking forward to studying my scan in December.
I just wish all neuros were like him.
Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.
If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.
The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.
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