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The MS PEOPLE UK Forum
Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.
  • Welcome to MS People UK!

    Looking for support about MS? Would you like to help others with MS? Please join our friendly community.

     

Forums

  1. Multiple Sclerosis Discussion & Information

    1. General Discussion about MS

      Questions, support and general talk about MS.

      5,957 topics
      59,774 posts
    2. A Survivor's Guide to Multiple Sclerosis

      How MS feels and other topics of interest. Replies only

      26 topics
      375 posts
    3. MS Medical Research, Surveys, Projects and Studies

      Please see the Rules in the section before posting.

      79 topics
      330 posts
  2. Friendship & Fun

    1. The Lounge

      Chat about day-to-day things that are NOT especially MS related.

      1,658 topics
      14,520 posts
    2. Jokes & Games

      Share your jokes, games, quizzes and riddles here.

      1,144 topics
      5,993 posts
  3. Forum Info and Help

    1. 83 topics
      134 posts
    2. How To's

      "How To's" and tips on using the forum. Replies only (where allowed)

      23 topics
      24 posts
    3. Help using forum, Feedback, Wish List

      Comments, questions, etc, about the forum and how to use it.

      82 topics
      744 posts
  • Spotlight

    • Taking medicines abroad
      I try and go abroad at least once a year and, in the past, have given little consideration to just how I carry my drugs with me. We always used to take a pill box and set out the meds on a day-by-day schedule. One problem with this is that drugs should be carried in their original packaging. I've never had much of a problem but, more recently, realised I should be paying a bit more attention to the formal ...
      • 8 replies
    • The Mountain Poem
      This poem, originally written for mental health, could also apply to Multiple Sclerosis where fatigue and pain are invisible and helps explain how we may cope with it.
       
      If the mountain seems too big today,
      then climb a hill instead.
      If the morning brings you sadness,
        • Like
      • 1 reply
    • It's never too late...
      I was reading some MS news and I thought: “It's all too late for me.” Then I remembered how HARD I've been working on my negative tendencies and how SUCCESSFUL that has been, so far. MS challenges us every day. For me, it is never too late to work at being positive and to learn a new skill with whatever abilities I have left to use. What positive aims and goals do you have?
        • Love
      • 8 replies
    • DLA to PIP
      Well, this morning's post brought the DWP letter I have been expecting for about two years! Yep, you've got it, would I like to apply for PIP as the DLA is ending. I feel like I might be the last person on the planet to get the letter, but probably not! Having sorted out the various requirements needed to make the initial call, and having referred to the members-only guides on the Benefits&Work site ...
        • Like
      • 102 replies
    • Talking to others about your MS
      As some of you know, I have been writing and talking about my MS since I was diagnosed in 2007. One thing I was glad I did back then was tell people that I had MS. This is probably not something anyone should suggest or recommend to others just diagnosed. For myself, it turned out to be a good decision. It's a strange thing, when you tell most people they simply don't understand ...
        • Like
      • 8 replies
    • How We With MS Feel...
      When we say we can't do something because we don't feel well, put yourself in our shoes by using the examples of our symptoms below...
       
      Painful heavy legs: Apply tightly 20 lb ankle weights and 15 lb thigh weights, then take a 1 mile walk, clean the house, go shopping and then sit down - how ya' feeling now? ...
        • Like
      • 21 replies
  • Latest Resources

  • Latest Posts in Topics

    • Marina
      I had my 2nd AstraZeneca jab last week. Having heard that side effects could be worse after the 2nd Pfizer jab but less after the AZ jab, I was expecting to have milder, if any, side effects. Not quite so...   Firstly, I had to have the jab in my right arm as I fell over 2 or 3 weeks previously and had badly bruised my left arm, leaving it still bruised, sore and achy. The position of the chair made it a bit awkward for the nurse to reach my right arm. Having not felt the jab the first time, I hoped it would be the same this time, except I most definitely felt it and jumped as a result. That left nice little blood spots all over my shirt.   I again felt sleepy on the day, like I did with the 1st jab, but not quite as badly.   The next day, my legs deeply ached, with my left leg worse than the right. I only had a very mild headache, barely noticeable. And I generally felt more wiped out than I normally do but I wasn't falling asleep all over the place like after the 1st jab.   But, I had something else really weird! Also on the day after the jab, the ball of my left foot progressively began to hurt, so that by the evening the pain made it as good as impossible to walk on it. I had very badly bruised that foot in the fall I had, and suspect I might have bruised/fractured toes/metatarsals, although I didn’t have pain after the first couple of days after the fall unless I touched any of the bruises. Initially, I wondered if I’d somehow done something to my toes when going for the jab (in my slippers!) that my foot should hurt so much. Then I later looked at the sole of my foot to see it was puffy on the ball, which is when I realised the pain was coming from the ball of my foot and not my toes. The next morning, I was on the phone for about an hour (!) and the pain and puffiness magically disappeared after I hung up! I’ve put this down to “muscle and joint pain” as an adverse effect. I couldn’t get to speak to a GP about it, all the surgery could tell me was that they’d passed it on to a GP and that it “had been noted”.   My arm is still achy, sore and heavy, albeit a bit better today. So I’ve had to sleep on my back for the past few days as both arms have been too sore to sleep on my side.
    • Leo1976
      Many thanks Stumbler !,ive tried many ms sites & had no reply @!all ,thanks for yours I really appreciate your thoughts & advice .
    • Stumbler
      @Leo1976 , this is the best place to start :-   Multiple sclerosis and driving - GOV.UK WWW.GOV.UK You must tell DVLA if you have multiple sclerosis - download the correct form to let them know   It's not the definitive answer that you require, but definitive answers need full communication. This form will allow the DVLA to seek details of how your MS affects you from your GP and Consultant.   Then a decision is taken. The links on the webpage will explain the process.   Good luck in getting your life back on track.    
    • Leo1976
      My job is driving  hgv’s ,I was diagnosed with probable ms in January after leg & knee probs ,I’ve now been taken off driving & given a temporary menial role as been with company for an age .my question is will I ever drive hgv’s again ? I could @ present drive under section 88 but management refuse ,has anyone else got experience  of a situation like this ? ...thanks I’m advance for any answer or advice .....Newby !!
    • Green95
      Thanks marina, I'll take a look.
  • The forum's lifetime

    • This forum was born on
      16 Jul 2004, 10:20 pm
    • and has been going for
      16 years and 10 months
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About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.


The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
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