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The MS PEOPLE UK Forum
Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.
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    Looking for support about MS? Would you like to help others with MS? Please join our friendly community.

     

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Forums

  1. Multiple Sclerosis Discussion & Information

    1. General Discussion about MS

      Questions, support and general talk about MS.

      5,950 topics
      59,735 posts
    2. A Survivor's Guide to Multiple Sclerosis

      How MS feels and other topics of interest. Replies only

      26 topics
      375 posts
    3. MS Medical Research, Surveys, Projects and Studies

      Please see the Rules in the section before posting.

      78 topics
      329 posts
  2. Friendship & Fun

    1. The Lounge

      Chat about day-to-day things that are NOT especially MS related.

      1,658 topics
      14,520 posts
    2. Jokes & Games

      Share your jokes, games, quizzes and riddles here.

      1,144 topics
      5,993 posts
  3. Forum Info and Help

    1. 83 topics
      134 posts
    2. How To's

      "How To's" and tips on using the forum. Replies only (where allowed)

      23 topics
      24 posts
    3. Help using forum, Feedback, Wish List

      Comments, questions, etc, about the forum and how to use it.

      82 topics
      744 posts
  • Spotlight

    • Taking medicines abroad
      I try and go abroad at least once a year and, in the past, have given little consideration to just how I carry my drugs with me. We always used to take a pill box and set out the meds on a day-by-day schedule. One problem with this is that drugs should be carried in their original packaging. I've never had much of a problem but, more recently, realised I should be paying a bit more attention to the formal ...
      • 8 replies
    • The Mountain Poem
      This poem, originally written for mental health, could also apply to Multiple Sclerosis where fatigue and pain are invisible and helps explain how we may cope with it.
       
      If the mountain seems too big today,
      then climb a hill instead.
      If the morning brings you sadness,
        • Like
      • 1 reply
    • It's never too late...
      I was reading some MS news and I thought: “It's all too late for me.” Then I remembered how HARD I've been working on my negative tendencies and how SUCCESSFUL that has been, so far. MS challenges us every day. For me, it is never too late to work at being positive and to learn a new skill with whatever abilities I have left to use. What positive aims and goals do you have?
        • Love
      • 8 replies
    • DLA to PIP
      Well, this morning's post brought the DWP letter I have been expecting for about two years! Yep, you've got it, would I like to apply for PIP as the DLA is ending. I feel like I might be the last person on the planet to get the letter, but probably not! Having sorted out the various requirements needed to make the initial call, and having referred to the members-only guides on the Benefits&Work site ...
        • Like
      • 102 replies
    • Talking to others about your MS
      As some of you know, I have been writing and talking about my MS since I was diagnosed in 2007. One thing I was glad I did back then was tell people that I had MS. This is probably not something anyone should suggest or recommend to others just diagnosed. For myself, it turned out to be a good decision. It's a strange thing, when you tell most people they simply don't understand ...
        • Like
      • 8 replies
    • How We With MS Feel...
      When we say we can't do something because we don't feel well, put yourself in our shoes by using the examples of our symptoms below...
       
      Painful heavy legs: Apply tightly 20 lb ankle weights and 15 lb thigh weights, then take a 1 mile walk, clean the house, go shopping and then sit down - how ya' feeling now? ...
        • Like
      • 21 replies
  • Latest Resources

  • Latest Posts in Topics

    • Marina
      The MS Trust take a closer look to find out more about the research behind the headlines about the potential treatment for Multiple Sclerosis which uses technology similar to two of the Covid-19 vaccines.   Researchers develop mRNA vaccine to treat MS-like condition in mice | MS Trust MSTRUST.ORG.UK Researchers develop mRNA vaccine to treat MS-like condition in mice  
    • Stumbler
      @Marina , I've been indoors since August 2019, when I came out of hospital following another UTI. My MS suffers from what I call Uri-progression - I'm never the same after a UTI! Going out is now too damned difficult  and I just decided that there's nowhere I really want to go! It's not fair on my wife, Colleen, but going out with me just wouldn't be enjoyable - I'd be anxious and stressing and so would colleen, so neither of us would enjoy the experience!   Colleen had the vaccine on Saturday. Just to show you how much disarray the NHS is in, her superiors were unable to arrange the jab for her, so she took the initiative and arranged it herself! So, in three week's time, she should have some immunity. But, I agree with your view, that whilst she should be able to manage the virus herself, would she then become contagious.....??   It's not a good time for Colleen, whose been redeployed to the wards this week. There's just a lot of pressure on everybody. Teamwork seems to have gone out of the window and that's before you have to deal with all the numpties!  
    • Marina
      Only if you catch it, John, and then it’s not a given that it would be a severe case; saying “susceptible” is a bit like saying “might”.   Even though I didn’t technically have to shield as I’m not clinically “extremely” vulnerable (merely vulnerable ), I have been shielding since March by choice. The only times I’ve been out is to go to the dentist for a tricky root canal treatment, and no-one comes into the house unless for emergency repairs when all precautions are taken and windows opened, etc. I’m super careful with any deliveries too. I live alone, so it’s a bit of a tough call (especially when your other half is in another country!), it’s just as well I’m used to not going out much due to my MS.   Has your wife had the vaccine yet? Although I believe it doesn’t stop transmission as such...   It must be a harrowing time for your wife. I know an NHS nurse too and she has to face all sorts of awful things, including anti-vaxxers and covidiots who think the virus is a hoax, etc...
    • Stumbler
      Oh 💩!  I'm over 60, SPMS, I'm a man, EDSS of 7 AND my wife is an NHS nurse!    I'm toast!!!!!!  
    • Marina
      This is very early days, but might offer some hope for the future?   BioNTech Vaccine Treats MS in Mice Without Dampening Immune System MULTIPLESCLEROSISNEWSTODAY.COM BioNTech’s experimental non-inflammatory vaccine — designed to dampen the abnormal immune responses seen in multiple sclerosis (MS) against myelin — delayed the onset and...  
    • Marina
      This article refers to the Pfizer and Moderna vaccine, and not to the Oxford AstraZeneca one.   The coronavirus and MS – updated global advice WWW.MSIF.ORG MSIF's advice has been updated following extensive consultation with MS neurologists and research experts from the MSIF movement.
      It also says:
      “The following groups of people with MS are more susceptible to having a severe case of COVID-19:
          •    People with progressive MS
          •    People with MS over the age of 60
          •    Men with MS
          •    Black people with MS and possibly South Asian people with MS
          •    People with higher levels of disability (for example, an EDSS score of 6 or above, which relates to needing to use a walking stick)
          •    People with MS and obesity, diabetes or diseases of the heart or lungs
          •    People taking certain disease modifying therapies for their MS”
      I’m SPMS, over 60, and have an EDSS of 6...  but due to a possible anaphylactic allergy to penicillin, I may not be able to have any of the RNA vaccines, although the Oxford AstraZeneca one should be OK.
  • Latest Mood Updates

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      Gosport Nancy is now Busy
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      PaulX is now Lurking
  • The forum's lifetime

    • This forum was born on
      16 Jul 2004, 10:20 pm
    • and has been going for
      16 years and 5 months

About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.


The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
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