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The MS PEOPLE UK Forum
Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.
  • Welcome to MS People UK!

    Looking for support about MS? Would you like to help others with MS? Please join our friendly community.

     

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Forums

  1. Multiple Sclerosis Discussion & Information

    1. General Discussion about MS

      Questions, support and general talk about MS.

      5,945 topics
      59,714 posts
    2. A Survivor's Guide to Multiple Sclerosis

      How MS feels and other topics of interest. Replies only

      26 topics
      375 posts
    3. MS Medical Research, Surveys, Projects and Studies

      Please see the Rules in the section before posting.

      78 topics
      329 posts
  2. Friendship & Fun

    1. The Lounge

      Chat about day-to-day things that are NOT especially MS related.

      1,658 topics
      14,520 posts
    2. Jokes & Games

      Share your jokes, games, quizzes and riddles here.

      1,143 topics
      5,990 posts
  3. Forum Info and Help

    1. 83 topics
      134 posts
    2. How To's

      "How To's" and tips on using the forum. Replies only (where allowed)

      23 topics
      24 posts
    3. Help using forum, Feedback, Wish List

      Comments, questions, etc, about the forum and how to use it.

      82 topics
      744 posts
  • Spotlight

    • Taking medicines abroad
      I try and go abroad at least once a year and, in the past, have given little consideration to just how I carry my drugs with me. We always used to take a pill box and set out the meds on a day-by-day schedule. One problem with this is that drugs should be carried in their original packaging. I've never had much of a problem but, more recently, realised I should be paying a bit more attention to the formal ...
      • 8 replies
    • The Mountain Poem
      This poem, originally written for mental health, could also apply to Multiple Sclerosis where fatigue and pain are invisible and helps explain how we may cope with it.
       
      If the mountain seems too big today,
      then climb a hill instead.
      If the morning brings you sadness,
        • Like
      • 1 reply
    • It's never too late...
      I was reading some MS news and I thought: “It's all too late for me.” Then I remembered how HARD I've been working on my negative tendencies and how SUCCESSFUL that has been, so far. MS challenges us every day. For me, it is never too late to work at being positive and to learn a new skill with whatever abilities I have left to use. What positive aims and goals do you have?
        • Love
      • 8 replies
    • DLA to PIP
      Well, this morning's post brought the DWP letter I have been expecting for about two years! Yep, you've got it, would I like to apply for PIP as the DLA is ending. I feel like I might be the last person on the planet to get the letter, but probably not! Having sorted out the various requirements needed to make the initial call, and having referred to the members-only guides on the Benefits&Work site ...
        • Like
      • 102 replies
    • Talking to others about your MS
      As some of you know, I have been writing and talking about my MS since I was diagnosed in 2007. One thing I was glad I did back then was tell people that I had MS. This is probably not something anyone should suggest or recommend to others just diagnosed. For myself, it turned out to be a good decision. It's a strange thing, when you tell most people they simply don't understand ...
        • Like
      • 8 replies
    • How We With MS Feel...
      When we say we can't do something because we don't feel well, put yourself in our shoes by using the examples of our symptoms below...
       
      Painful heavy legs: Apply tightly 20 lb ankle weights and 15 lb thigh weights, then take a 1 mile walk, clean the house, go shopping and then sit down - how ya' feeling now? ...
        • Like
      • 21 replies
  • Latest Resources

  • Latest Posts in Topics

    • Gosport Nancy
      @Happymama Hey there. Thanks for the reminder to get back here. I just checked and I was last here on the 3rd July   So we have survived the 1st lockdown and am now looking forward to staying indoors over the silly season in December. I've been getting even more forgetful and had to cancel my brain scan due to lockdown. The lady from the radiology department said her department was COVID secure but I doubt the rest of the hospital is. I can no longer walk the whole length of the hospital corridors and can't work out how to social distance in a taxi when so many drivers are refusing to wear face coverings!
    • Happymama
      The key, I suspect, is to learn to live in the moment.     The other day I was sat having my peppermint tea, and outside at the front is a hazel bush, now nude, with a fat ball hanger on a branch. There is a resident robin that was dining there every morning and that day a blue tit found it too.  There followed a fascinating battle - lots of posturing by the blue tit:  a lot of wing and tail flickering, and the odd aerial combat in the centre of the bush, then the blue tit would posture some more while working it's way round to the hanger again. Once latched on the robin did a fly past and knocked it off again.  This carried on for ages.  Eventually the robin gave up and went away and the blue tit had it's meal.  I've seen a flock of long tailed tits on that hanger too.  First time I've seen them here.     We get sparrow hawks, the females take pigeons.  
    • Happymama
      My location isn't the same as where I'm from - I'm from West Yorkshire but live in Co Durham.  Legacy of time in the RAF, this is.  That and divorce.  
    • Happymama
      GP has asked me to ring her but I keep getting no answer or engaged - it took me two weeks to get an emergency appt at the dentist when I swallowed half a molar so its probably the same at the GP.  She took two weeks to ring me back last time I asked for her to. I know she's there on Mondays so shall try again next Monday.     The other day I came down the stairs and the tops of my legs felt awful.  A bit achey and weak - and I mean weak.  Both at the same time, just the tops.  I was wobbling.  Scary stuff.  Flopped on the sofa and it cleared.  
    • Happymama
      FWIW, hand sanitising seems to work. My two teens started college this year - blended learning so there two and a half days a week - and usually they get colds a few weeks after they start in the autumn, and a few weeks after they start after Christmas.  No sign of any colds in anyone yet.  This should bode well for the flu too (I've been texted to ring to book for a flu jab).     So keep sanitising, distancing and masking up.  
    • Happymama
      Blimey, Nancy!  I know how you feel though - I have this thing which may be down to the torrid perimenopause I'm going through, might be dementia or might be just lesions running rampant in my head.  I have no way of finding out, apparently.   I can't find words for some things. I get close - so if I want to say fridge I say cooker/dishwasher/sink until I get to where I want to be. I do this a lot.  And forget stuff; I used to have a fabulous memory and now I can't remember conversations from the night before when one of the spawn tell me they want picking up early from college.  I'm 54 years old, not 84!     I'm kinda hoping that HRT will help, I have no libido, no mojo, don't sleep well, have low mood (and depression).  I've just had a temporary filling put in a cracked molar, and there was the dentist telling me that as we age, our teeth get fragile ... blinking heck, he's at it too - I'M NOT OLD!       I know quite a few older people who have travel anxiety, so you're not alone with that.  And as to family - couldn't get hold of my mum to find out when to take the Christmas present down (12 bottles of wine every year) so, worried, I drove for an hour and a half  to check her house to find she's moved and not told me.  Had a letter a week later saying she's moved but has no phone yet.  Communication is everything ... 
  • Latest Mood Updates

    • Trace
      Trace is now Depressed
    • Gosport Nancy
      Gosport Nancy is now Busy
    • PaulX
      PaulX is now Lurking
  • The forum's lifetime

    • This forum was born on
      16 Jul 2004, 10:20 pm
    • and has been going for
      16 years and 4 months

About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.


The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
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