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The MS PEOPLE UK Forum
Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.

  • Welcome to MS People UK!

    Looking for support about MS? Would you like to help others with MS? Please join our friendly community.

     

Forums

  1. Multiple Sclerosis Discussion & Information

    1. General Discussion about MS

      Questions, support and general talk about MS.

      5,909 topics
      59,452 posts

    2. A Survivor's Guide to Multiple Sclerosis

      How MS feels and other topics of interest. Replies only

      26 topics
      374 posts

    3. MS Medical Research, Surveys, Projects and Studies

      Please see the Rules in the section before posting.

      76 topics
      327 posts

  2. Friendship & Fun

    1. The Lounge

      Chat about day-to-day things that are NOT especially MS related.

      1,655 topics
      14,551 posts

    2. Jokes & Games

      Share your jokes, games, quizzes and riddles here.

      1,143 topics
      5,990 posts

  3. Forum Info and Help

    1. Announcements and Updates

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    2. How To's

      "How To's" and tips on using the forum. Replies only (where allowed)

      24 topics
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    3. Help using forum, Feedback, Wish List

      Comments, questions, etc, about the forum and how to use it.

      82 topics
      744 posts

  • Spotlight

    • Taking medicines abroad

      Taking medicines abroad

      Nick posted a topic in General Discussion about MS,

      I try and go abroad at least once a year and, in the past, have given little consideration to just how I carry my drugs with me. We always used to take a pill box and set out the meds on a day-by-day schedule. One problem with this is that drugs should be carried in their original packaging. I've never had much of a problem but, more recently, realised I should be paying a bit more attention to the formal ...
      • 8 replies
    • The Mountain Poem

      The Mountain Poem

      Marina posted a topic in A Survivor's Guide to Multiple Sclerosis,

      This poem, originally written for mental health, could also apply to Multiple Sclerosis where fatigue and pain are invisible and helps explain how we may cope with it.
       
      If the mountain seems too big today,
      then climb a hill instead.
      If the morning brings you sadness,
        • Like
      • 1 reply
    • It's never too late...

      It's never too late...

      Shirl posted a topic in The Lounge,

      I was reading some MS news and I thought: “It's all too late for me.” Then I remembered how HARD I've been working on my negative tendencies and how SUCCESSFUL that has been, so far. MS challenges us every day. For me, it is never too late to work at being positive and to learn a new skill with whatever abilities I have left to use. What positive aims and goals do you have?
        • Love
      • 7 replies
    • Pete's No Beard Or Hair Cuts 2019 (Colour in December) Challenge for MS Trust

      Pete's No Beard Or Hair Cuts 2019 (Colour in December) Challenge for MS Trust

      Shirl posted a topic in The Lounge,

      My husband Pete is raising money for the MS Trust. He won’t cut his hair or beard for all of 2019. Then, at the close of the year, Pete will have his hair and beard dyed. The 3 colours he has chosen to wear on his head and facial hair all have meaning: Blue and White for MS Trust, with Tangerine to make the colours used by Pete's favourite football club.
        • Love
      • 71 replies
    • DLA to PIP

      DLA to PIP

      Nick posted a topic in General Discussion about MS,

      Well, this morning's post brought the DWP letter I have been expecting for about two years! Yep, you've got it, would I like to apply for PIP as the DLA is ending. I feel like I might be the last person on the planet to get the letter, but probably not! Having sorted out the various requirements needed to make the initial call, and having referred to the members-only guides on the Benefits&Work site ...
        • Like
      • 89 replies
    • Talking to others about your MS

      Talking to others about your MS

      Nick posted a topic in General Discussion about MS,

      As some of you know, I have been writing and talking about my MS since I was diagnosed in 2007. One thing I was glad I did back then was tell people that I had MS. This is probably not something anyone should suggest or recommend to others just diagnosed. For myself, it turned out to be a good decision. It's a strange thing, when you tell most people they simply don't understand ...
        • Like
      • 8 replies
    View All

  • Latest Resources

  • Latest Posts in Topics

    • Stumbler
      @Eastendgirl , here's a video from Aaron Boster, an eminent Neurologist from the States which might answer some of your questions :-    

      By Stumbler

      In Clinically stable but feeling rubbish 1

    • Eastendgirl
      My RRMS is ‘clinically stable’ apparently – why do I feel so bloody crap then…!?  No new symptoms, just the old ones making me feel rubbish. But seemingly that’s ok because there’s nothing they can do about them now as the damage is already done.  Wasn’t told how important it was to go on DMD’s when I first had symptoms, Neurologist now says I’m not eligible until I have 2 new relapses within 2 years – but what about damage being done behind the scenes so to speak?    

      By Eastendgirl

      In Clinically stable but feeling rubbish 1

    • Stumbler
      @Catherine , undoubtedly, there are more effective treatments available now, but each treatment has its pros and cons and Brabio is therefore worthy of consideration.   I always get concerned when "cheaper" options are offered on a "let's wait and see if you get worse" basis. We don't want to get worse, we just want the best treatment to keep our MS under control.    

      By Stumbler

      In Brabio 5

    • Catherine
      Thanks for this but the drug companies are always going to try and show their drug in a good light. I was hoping someone who takes Brabio might be able to share some first-hand experience and tips. I have found a group on Facebook so hopefully I can find answers there. Thank you again. Catherine

      By Catherine

      In Brabio 5

    • Marina
      Hi @Jayne and welcome!   In addition to Stumbler's link, you might like to take a peek at this older topic:     If you find anything that works, please do let us know; I tend to have sleep problems too and am permanently knackered all day long...

      By Marina

      In Ms and sleep 2

    • Stumbler
      @Jayne , have a read through this and see if it offers any ideas :-     Sleep | MS Trust WWW.MSTRUST.ORG.UK Poor sleep is common in people with multiple sclerosis. Addressing the causes can improve energy levels and quality of life. Find out more about sleep in this A-Z entry.    

      By Stumbler

      In Ms and sleep 2

  • Latest Mood Updates

    • Shirl
      Shirl is now Vegged Out
    • Stumbler
      Stumbler is now Procrastinating
    • Marina
      Marina is now Crappy

  • The forum's lifetime

    • This forum was born on
      16 Jul 2004, 10:20 pm
    • and has been going for
      15 years and 6 months

About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.


The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
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