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The MS PEOPLE UK Forum
Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.
  • Welcome to MS People UK!

    Looking for support about MS? Would you like to help others with MS? Please join our friendly community.

     

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Forums

  1. Multiple Sclerosis Discussion & Information

    1. General Discussion about MS

      Questions, support and general talk about MS.

      5,954 topics
      59,752 posts
    2. A Survivor's Guide to Multiple Sclerosis

      How MS feels and other topics of interest. Replies only

      26 topics
      375 posts
    3. MS Medical Research, Surveys, Projects and Studies

      Please see the Rules in the section before posting.

      79 topics
      330 posts
  2. Friendship & Fun

    1. The Lounge

      Chat about day-to-day things that are NOT especially MS related.

      1,658 topics
      14,520 posts
    2. Jokes & Games

      Share your jokes, games, quizzes and riddles here.

      1,144 topics
      5,993 posts
  3. Forum Info and Help

    1. 83 topics
      134 posts
    2. How To's

      "How To's" and tips on using the forum. Replies only (where allowed)

      23 topics
      24 posts
    3. Help using forum, Feedback, Wish List

      Comments, questions, etc, about the forum and how to use it.

      82 topics
      744 posts
  • Spotlight

    • Taking medicines abroad
      I try and go abroad at least once a year and, in the past, have given little consideration to just how I carry my drugs with me. We always used to take a pill box and set out the meds on a day-by-day schedule. One problem with this is that drugs should be carried in their original packaging. I've never had much of a problem but, more recently, realised I should be paying a bit more attention to the formal ...
      • 8 replies
    • The Mountain Poem
      This poem, originally written for mental health, could also apply to Multiple Sclerosis where fatigue and pain are invisible and helps explain how we may cope with it.
       
      If the mountain seems too big today,
      then climb a hill instead.
      If the morning brings you sadness,
        • Like
      • 1 reply
    • It's never too late...
      I was reading some MS news and I thought: “It's all too late for me.” Then I remembered how HARD I've been working on my negative tendencies and how SUCCESSFUL that has been, so far. MS challenges us every day. For me, it is never too late to work at being positive and to learn a new skill with whatever abilities I have left to use. What positive aims and goals do you have?
        • Love
      • 8 replies
    • DLA to PIP
      Well, this morning's post brought the DWP letter I have been expecting for about two years! Yep, you've got it, would I like to apply for PIP as the DLA is ending. I feel like I might be the last person on the planet to get the letter, but probably not! Having sorted out the various requirements needed to make the initial call, and having referred to the members-only guides on the Benefits&Work site ...
        • Like
      • 102 replies
    • Talking to others about your MS
      As some of you know, I have been writing and talking about my MS since I was diagnosed in 2007. One thing I was glad I did back then was tell people that I had MS. This is probably not something anyone should suggest or recommend to others just diagnosed. For myself, it turned out to be a good decision. It's a strange thing, when you tell most people they simply don't understand ...
        • Like
      • 8 replies
    • How We With MS Feel...
      When we say we can't do something because we don't feel well, put yourself in our shoes by using the examples of our symptoms below...
       
      Painful heavy legs: Apply tightly 20 lb ankle weights and 15 lb thigh weights, then take a 1 mile walk, clean the house, go shopping and then sit down - how ya' feeling now? ...
        • Like
      • 21 replies
  • Latest Resources

  • Latest Posts in Topics

    • Jaynee
      I have lived with MS  14 years ( now SPMS), I’m housebound but I’m not in wheelchair! I walk and balance a bit dodgy !! I try to exercise so I don’t seize up and I teach other warriors exercises too !! It’s great mentally & physically! It increases fitness, endurance, strength, flexibility, gait, posture, balance, coordination and mood ! Decreasing spasisity, pain, weight, fatigue!! If you have MS like me ... If your balance is not good... If your walking is dodgy... If your body is seizing up... If your symptoms are exacerbating... DO THIS, SEATED, STANDING, LYING ONLY: “Multiple Sclerosis Fitness with Jayne MSer & Warrior “: YouTube U.K. Try if you are able to 💋Big hug 💋 Encouragement, inspiration and help is all I want to give!!!!!    
    • Stumbler
      Hi @MrsCB,   Duloxetine and Pregabalin are OK-ish for sensory pain, e.g. the burning, itching, pins & needles, etc. They're not so good for musculo-skeletal pain.   The different causes of pain have different treatments. The following might help :-     Pain | MS Trust MSTRUST.ORG.UK Pain   Do contact your MS Nurse to  discuss this issue further.  
    • MrsCB
      Hello everybody. I have SPMS and have horrendous pain in my legs - has anyone any advice or suggestions for medication that might help? I already take Duloxetine and Pregabalin at their maximum dose.
    • Marina
      Ah, sounds like you've fallen onto a rare endo who's OK with NDT! They are few and far between. Getting there is indeed a long slog of exhaustion. Sometimes, some people up and lower their NDT doses from time to time, too, depending on symptoms.   It's worth a shot giving NDT a go, even if it's a slow process of upping the dose by half a grain every few weeks till you reach what might be optimal for you. I know that a lot of people felt much better when they switched to NDT from Levo.   As for the foot spasms, I guess only time will tell. If they one day come back for no apparent reason, then it might be that it's a newer MS symptom for you.   Let us know, please, how you get on with the NDT if you go that route?
    • Jez-benign
      Thanks for responding, yes getting thyroxine right is a long process. I've never had foot spasms before they only started with levothyroxine. And yes he's suggested NDT as the next step if we can't get it right with synthetic thyroxine. It's a long slog of exhaustion isn't it. 
    • Stumbler
      @Marina , it doesn't surprise me that your MS had a minor "grumble"!   The vaccine is creating antibodies and as we know, our compromised immune system doesn't like anything interfering with it.   Glad you recovered quickly.  
  • Latest Mood Updates

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      Trace is now Depressed
    • Gosport Nancy
      Gosport Nancy is now Busy
    • PaulX
      PaulX is now Lurking
  • The forum's lifetime

    • This forum was born on
      16 Jul 2004, 10:20 pm
    • and has been going for
      16 years and 9 months

About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.


The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
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