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The MS PEOPLE UK Forum
Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.
  • Welcome to MS People UK!

    Looking for support about MS? Would you like to help others with MS? Please join our friendly community.

     

Forums

  1. Multiple Sclerosis Discussion & Information

    1. General Discussion about MS

      Questions, support and general talk about MS.

      5,919 topics
      59,516 posts
    2. A Survivor's Guide to Multiple Sclerosis

      How MS feels and other topics of interest. Replies only

      26 topics
      374 posts
    3. MS Medical Research, Surveys, Projects and Studies

      Please see the Rules in the section before posting.

      76 topics
      327 posts
  2. Friendship & Fun

    1. The Lounge

      Chat about day-to-day things that are NOT especially MS related.

      1,654 topics
      14,479 posts
    2. Jokes & Games

      Share your jokes, games, quizzes and riddles here.

      1,143 topics
      5,990 posts
  3. Forum Info and Help

    1. 85 topics
      136 posts
    2. How To's

      "How To's" and tips on using the forum. Replies only (where allowed)

      24 topics
      26 posts
    3. Help using forum, Feedback, Wish List

      Comments, questions, etc, about the forum and how to use it.

      82 topics
      744 posts
  • Spotlight

    • Taking medicines abroad
      I try and go abroad at least once a year and, in the past, have given little consideration to just how I carry my drugs with me. We always used to take a pill box and set out the meds on a day-by-day schedule. One problem with this is that drugs should be carried in their original packaging. I've never had much of a problem but, more recently, realised I should be paying a bit more attention to the formal ...
      • 8 replies
    • The Mountain Poem
      This poem, originally written for mental health, could also apply to Multiple Sclerosis where fatigue and pain are invisible and helps explain how we may cope with it.
       
      If the mountain seems too big today,
      then climb a hill instead.
      If the morning brings you sadness,
        • Like
      • 1 reply
    • It's never too late...
      I was reading some MS news and I thought: “It's all too late for me.” Then I remembered how HARD I've been working on my negative tendencies and how SUCCESSFUL that has been, so far. MS challenges us every day. For me, it is never too late to work at being positive and to learn a new skill with whatever abilities I have left to use. What positive aims and goals do you have?
        • Love
      • 7 replies
    • DLA to PIP
      Well, this morning's post brought the DWP letter I have been expecting for about two years! Yep, you've got it, would I like to apply for PIP as the DLA is ending. I feel like I might be the last person on the planet to get the letter, but probably not! Having sorted out the various requirements needed to make the initial call, and having referred to the members-only guides on the Benefits&Work site ...
        • Like
      • 89 replies
    • Talking to others about your MS
      As some of you know, I have been writing and talking about my MS since I was diagnosed in 2007. One thing I was glad I did back then was tell people that I had MS. This is probably not something anyone should suggest or recommend to others just diagnosed. For myself, it turned out to be a good decision. It's a strange thing, when you tell most people they simply don't understand ...
        • Like
      • 8 replies
    • How We With MS Feel...
      When we say we can't do something because we don't feel well, put yourself in our shoes by using the examples of our symptoms below...
       
      Painful heavy legs: Apply tightly 20 lb ankle weights and 15 lb thigh weights, then take a 1 mile walk, clean the house, go shopping and then sit down - how ya' feeling now? ...
        • Like
      • 21 replies
  • Latest Resources

  • Latest Posts in Topics

    • Stumbler
      @Happymama  , I'm glad you put that last sentence on your penultimate post because it cannot be healthy going through what you're going through.   Please update this thread when you hear from them.  
    • Happymama
      Forgot also to say that the most effective way I found to take laxatives regularly so as not to damage my food absorption ability was every four days two Dulcolax in the evening with a lot of water, then a suppository in the following morning.  This would sort out the top and the bottom, so to speak although after half an hour the suppository often didn't do as well as it should have - and I'd be passing something too big to pass unless you're a horse still.  OUCHa.     Not for long term.  Lactulose will become my best friend (yuck yuck yuck, had it when PG with the twins, so full of Relaxin hormones I was I started to fall to bits).      
    • Happymama
      Stumbler, I'm still in Limbo.   I've recovered, 8 and a half weeks after succumbing.  I feel very different, and have different noises and wind coming from my innards, and have gone naturally for the first time since just after Christmas.     I eat a LOT of fibre, and drink up to four pots of herbal tea a day - the last one a mild soporific. With three small mugs in each, plus water with two meals.  The fibre is inulin, konjac glugommanan, oat bran, flax seed flakes to put in/on food, plus food such as dates, nuts with skins, lentils and veg unskinned.    This is a left over from my keto diet after Christmas to lose the weight I put on at Christmas. I did lose it, felt amazing on the diet, with cognitive enhancement and more energy but constipation can be a thing with Keto but not with my diet!  So I dropped the keto and still had the very severe constipation.  I feel like I"m passing broken glass and it's only just starting to get better.  I have to take pain killers to sit down after.  I have broken the skin on one knuckle after biting it with the pain of going.     Thank goodness it's over.  I've had other new symptoms too, my right eyelid keeps getting ptosis after a period of twitching.  I've had a super agonising pain in my groin, not an electric shock, just pure white pain.  Pulsing.     So the letter will be at the GPs as soon as the (heavy) snow is cleared.  
    • Marina
      On the subject of how many people there are with MS, I've always been a bit sceptical about the numbers (in the UK). When this forum first started, it was 80,000, then increased to 100,000 and has now recently again increased to 120,000. I always used to think it has to be more that that, as so many people I know or meet know someone who has MS.    If the population of the UK is around 66.5 million, it would mean approximately 1 in 550 people have MS (if my maths are right). That doesn't fit at all, percentage-wise, with the amount of people who've told me they know someone with MS, and it's certainly more than 0.20%!
    • Marina
      I could write reams about Facebook vs forums, and previously made a number of points about FB in this older topic about the forum having become quiet:     Whilst a number of people have left FB in the past 2-3 years due to privacy issues, not everyone necessarily knows that forums (still) exist or even what a forum is (or "community" as they're now sometimes also called). Forums were where people went before FB became so popular took over the internet or before FB had "groups". People also have to have been on the internet long enough, or not be glued to FB only, to remember or know what forums are...
    • Michelle7070
      Hi Marina,   Facebook is so public, where this feels a more intimate place to discuss and read issues to do with MS, I am grateful that the forum is still here, it gives me a real sense of assurance that there are like minded people to read about. Michelle
  • Latest Mood Updates

    • Happymama
      Happymama is now Crappy
    • Shirl
      Shirl is now Vegged Out
    • Stumbler
      Stumbler is now Procrastinating
  • The forum's lifetime

    • This forum was born on
      16 Jul 2004, 10:20 pm
    • and has been going for
      15 years and 7 months

About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.


The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
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