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I'm Bartholomew and I've been boating in Belize 

I will never catch up with all the posts in this section since I left - temporarily, as it happens. So I'm bringing back one we did earlier -TEN years ago:   Let's get another game going through the alphabet:   I'm Albert and I've been abseiling in Argentina.   Looking forward to seeing how many activities we can find!    B is next...

Hello @Minky Madam & a very warm Whenever I read the experiences of those now in Limboland and those of us who escaped by hook and by crook, I'm painfully reminded I was where you are now when I first joined this forum.   I've recently returned and am glad to join Nick and Marina in all they've said to you. We've all known the frustrations, anxieties and confusion that Neuros unwittingly cause us. When I finally had my dx I felt like throwing a party. I don't know who I would have invited as friends and family had been certain all along so it wasn't new news to them.   And there is always the sceptical viewpoint - "if it isn't MS, what is it, because it isn't my imagination causing all this malaise".   Let those that have been where you are now support you! Nick and Marina have given excellent advice. I would only add that I never attend a medical apointment alone. Always take a good friend or family member if ever your husband is unable to go with you. I write a list of questions and my husband sits with it on his lap. He is able to talk for me when it all gets too much. He always notes down info for me.    And always keep letters and reports - if you need to claim a benefit, supporting evidence is a key requirement. As well as being your own data bank about YOU.

Needing the loo throughout the night has to rate as a component of insomnia. Not having the urge must be difficult to manage. I'm concerned you don't have a drink after late afternoon though - it could affect your kidneys. I've lost one of mine (careless of me) through infection and surgery complications.    Being in Limboland is not at all easy. I was left in there until we moved to a city with an excellent urological institute. They have been proactive in my care from the word GO.   The neuro I saw gathered reports from 3 previous hospitals (concurrent - we haven't been flitting around). He was thus able to confirm MS 11 years after a report was written and not shared with me.    Just keep on plugging away ; don't ever settle for being brushed aside, and well done for maintaining a happy mood. Limboland is too crowded so keep leaving it as your aim.

As long as posts are related to the topic subject, they can stay in the topic. Otherwise, you might prefer start a new topic, and you can always link to this topic if you feel it appropriate

Shirley,   What a fantastic post! Brilliant........suggest you don't give up writing.  I agree on so many points, trust your specialists,  and a forum where you can have time and space to ask questions.  Like you I am passionate about this forum (Many many thanks to Marina) It's helped me and I hope that some of my contributions have helped others. By the way I too am in the middle of a house move, first in 32 years.......... tough going, but getting there.    Nick

Limboland in one way, but have been for decades so just dealing with it. If you named the top ten most typical symptoms, I'd be shouting 'house', although lumbar puncture negative (learned a long time ago not to expect huge amounts from doctors). Flare up recently so lost some minor sensation in left arm and leg, double vision, and at the same time, the dumping syndrome got much worse so I couldn't eat without having breathing problems - which, out of the lot, is the nastiest. Back to insomnia from not being able to breathe properly again last night. I am determined to keep myself cheerful though.

I am unsure if I can reply in one post to several other posts.  Sorry, I have not been on this site  for a long time so please tell me if I am doing the wrong thing.  Re bladder issues I have had no urge for many years and a urologist told me that when this happens the body sends a message via restless legs (which feel identical to spasms, which I have as well, so that's not really helpful!).  So I always watch the clock (especially at night though I do find it difficult to remember one night from another) as I know if I am experiencing spasms or RSL depending on when I last went to the loo, and when in doubt I just try again. I do take Vesicare at night which I do find is helpful. I also try not to drink after 4.30pm.  Re insomnia I learnt to Muscle test (which is easy I can teach anyone who is interested over the internet I use it all the time) and use it to find out how long I slept.  So even though I might have seemed to be up all night with spasms I can ask and find out that I have had at least 4  hours broken sleep which I know is enough for me to feel ok