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The MS PEOPLE UK Forum
Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.

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  1. Multiple Sclerosis Discussion & Information

    1. General Discussion about MS

      Questions, support and general talk about MS.

      5,890 topics
      59,359 posts
    2. A Survivor's Guide to Multiple Sclerosis

      How MS feels and other topics of interest. Replies only

      26 topics
      374 posts
    3. MS Medical Research, Surveys, Projects and Studies

      Please see the Rules in the section before posting.

      74 topics
      324 posts
  2. Friendship & Fun

    1. The Lounge

      Chat about day-to-day things that are NOT especially MS related.

      1,651 topics
      14,496 posts
    2. Jokes & Games

      Share your jokes, games, quizzes and riddles here.

      1,143 topics
      5,990 posts
  3. Forum Info and Help

    1. 85 topics
      136 posts
    2. How To's

      "How To's" and tips on using the forum. Replies only (where allowed)

      24 topics
      26 posts
    3. Help using forum, Feedback, Wish List

      Comments, questions, etc, about the forum and how to use it.

      81 topics
      741 posts
  • Spotlight

    • Taking medicines abroad
      I try and go abroad at least once a year and, in the past, have given little consideration to just how I carry my drugs with me. We always used to take a pill box and set out the meds on a day-by-day schedule. One problem with this is that drugs should be carried in their original packaging. I've never had much of a problem but, more recently, realised I should be paying a bit more attention to the formal ...
      • 8 replies
    • The Mountain Poem
      This poem, originally written for mental health, could also apply to Multiple Sclerosis where fatigue and pain are invisible and helps explain how we may cope with it.
       
      If the mountain seems too big today,
      then climb a hill instead.
      If the morning brings you sadness,
        • Like
      • 1 reply
    • It's never too late...
      I was reading some MS news and I thought: “It's all too late for me.” Then I remembered how HARD I've been working on my negative tendencies and how SUCCESSFUL that has been, so far. MS challenges us every day. For me, it is never too late to work at being positive and to learn a new skill with whatever abilities I have left to use. What positive aims and goals do you have?
        • Love
      • 7 replies
    • Pete's No Beard Or Hair Cuts 2019 (Colour in December) Challenge for MS Trust
      My husband Pete is raising money for the MS Trust. He won’t cut his hair or beard for all of 2019. Then, at the close of the year, Pete will have his hair and beard dyed. The 3 colours he has chosen to wear on his head and facial hair all have meaning: Blue and White for MS Trust, with Tangerine to make the colours used by Pete's favourite football club.
        • Love
      • 28 replies
    • DLA to PIP
      Well, this morning's post brought the DWP letter I have been expecting for about two years! Yep, you've got it, would I like to apply for PIP as the DLA is ending. I feel like I might be the last person on the planet to get the letter, but probably not! Having sorted out the various requirements needed to make the initial call, and having referred to the members-only guides on the Benefits&Work site ...
        • Like
      • 84 replies
    • Talking to others about your MS
      As some of you know, I have been writing and talking about my MS since I was diagnosed in 2007. One thing I was glad I did back then was tell people that I had MS. This is probably not something anyone should suggest or recommend to others just diagnosed. For myself, it turned out to be a good decision. It's a strange thing, when you tell most people they simply don't understand ...
        • Like
      • 8 replies
  • Latest Resources

  • Latest Posts in Topics

    • Marina
      Dawn Langdon, Professor of Neuropsychology at the Royal Holloway, University of London, is supervising the following study:   Guest-post: MS mindset – Multiple Sclerosis Research Blog MULTIPLE-SCLEROSIS-RESEARCH.ORG Many people with MS experience cognitive difficulties (poor concentration, trouble remembering, “cog fog”…). We know quite a bit about how these difficulties play out on formal...   “We are trying to find a questionnaire that a person with MS could fill in, which could tell any health professional something useful about that person’s experience of their cognition. This could help the nurse or doctor present health information in a helpful way. It could flag up cognitive difficulties to health professionals and trigger them to monitor the additional risks that cognitive difficulties bring (poor disease management, including medication adherence; increased risk of falls and driving accidents; decreased involvement in life generally, including employment difficulties.   If you would like to help, are a person with MS and can spare 30 minutes, please fill in our online survey.
      Also please pass this on to anyone else that you think might be interested.   This study is the MSc Clinical Psychology thesis project for two students at Royal Holloway, University of London.”      
    • Marina
      I don't get those type of electric shock sensations, but I do get what feels like a thousand wires shorting (vibrating) in my feet, legs and abdomen. I can't take Pregabalin or Gabapentin due to side-effects but I have found that Tegretol (or Carbamazepine) helps, not 100% but it does mostly reduce the sensations. It's normally given to MSers for TN but my neuro told me, when first prescribing it, that it can act as a pain killer for other types of (nerve related) pain. NSAIDs don't touch any of these neuropathic pains for me either. Tegretol's not an opiate either.   Clonazepam can help with sleep too. This, like Tegretol, is initially an anti-epileptic, and is usually given to MSers for spasms. I find it helps a bit with the sensation of short-circuiting wires, but not as much as Tegretol.   I can sympathise with the sleep problems, I get this weird insomnia too... I can be so tired that my eyes are burning and closing, I go to sleep and wake up an hour later, wide awake. I once tried Valerian but it unfortunately did nothing for me; I wasn't aware it could help pain too. When desperate, I now take a Sominex, which is an antihistamine really, and I sleep like a log, except it can make me a bit groggy the next day, so I now tend to take half a tablet and it seems to work the same but leaves me less or not groggy.   I haven't found any natural things that help either pain or the insomnia-type sleep problems for me personally. However, CBD oil, which otherwise does nothing for me except maybe help my TN, does tend to help me stop "ruminating" when going to sleep.
    • Marina
      I totally agree with @Stumbler! Truly impressive   Can't wait to see the end result!
    • Stumbler
      Well done, @HairyPete and @Shirl. Pretty impressive stuff.   
    • HairyPete
      I went to the doctor's the other day and told him my hearing wasn't as good as it should be. He said, "What are the symptoms?" I said, "Homer's a yellow fat bloke and Marge has blue hair."
    • HairyPete
      The hair, beard and fund are all g(r)owing well and we hope to hit the £1,500 mark before I'm back at our local shopping centre in August. We're very much looking forward to meeting all the brilliant team at MS Trust HQ next month. I haven't yet given permission for them to stroke The Beard, but I probably will.   Now there's an idea; charge people for rummaging in the undergrowth. OK, I know there's a gag in there somewhere. 
  • Latest Mood Updates

    • Shirl
      Shirl is now Sluggish
    • WobblyGreg
      WobblyGreg is now Fine
    • Eastendgirl
      Eastendgirl is now Depressed
  • The forum's lifetime

    • This forum was born on
      16 Jul 2004, 10:20 pm
    • and has been going for
      14 years and 11 months

About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.


The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
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