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The MS PEOPLE UK Forum
Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.
  • Welcome to MS People UK!

    Looking for support about MS? Would you like to help others with MS? Please join our friendly community.

     

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Forums

  1. Multiple Sclerosis Discussion & Information

    1. General Discussion about MS

      Questions, support and general talk about MS.

      5,938 topics
      59,684 posts
    2. A Survivor's Guide to Multiple Sclerosis

      How MS feels and other topics of interest. Replies only

      26 topics
      375 posts
    3. MS Medical Research, Surveys, Projects and Studies

      Please see the Rules in the section before posting.

      78 topics
      329 posts
  2. Friendship & Fun

    1. The Lounge

      Chat about day-to-day things that are NOT especially MS related.

      1,657 topics
      14,511 posts
    2. Jokes & Games

      Share your jokes, games, quizzes and riddles here.

      1,143 topics
      5,990 posts
  3. Forum Info and Help

    1. 83 topics
      134 posts
    2. How To's

      "How To's" and tips on using the forum. Replies only (where allowed)

      23 topics
      24 posts
    3. Help using forum, Feedback, Wish List

      Comments, questions, etc, about the forum and how to use it.

      82 topics
      744 posts
  • Spotlight

    • Taking medicines abroad
      I try and go abroad at least once a year and, in the past, have given little consideration to just how I carry my drugs with me. We always used to take a pill box and set out the meds on a day-by-day schedule. One problem with this is that drugs should be carried in their original packaging. I've never had much of a problem but, more recently, realised I should be paying a bit more attention to the formal ...
      • 8 replies
    • The Mountain Poem
      This poem, originally written for mental health, could also apply to Multiple Sclerosis where fatigue and pain are invisible and helps explain how we may cope with it.
       
      If the mountain seems too big today,
      then climb a hill instead.
      If the morning brings you sadness,
        • Like
      • 1 reply
    • It's never too late...
      I was reading some MS news and I thought: “It's all too late for me.” Then I remembered how HARD I've been working on my negative tendencies and how SUCCESSFUL that has been, so far. MS challenges us every day. For me, it is never too late to work at being positive and to learn a new skill with whatever abilities I have left to use. What positive aims and goals do you have?
        • Love
      • 7 replies
    • DLA to PIP
      Well, this morning's post brought the DWP letter I have been expecting for about two years! Yep, you've got it, would I like to apply for PIP as the DLA is ending. I feel like I might be the last person on the planet to get the letter, but probably not! Having sorted out the various requirements needed to make the initial call, and having referred to the members-only guides on the Benefits&Work site ...
        • Like
      • 102 replies
    • Talking to others about your MS
      As some of you know, I have been writing and talking about my MS since I was diagnosed in 2007. One thing I was glad I did back then was tell people that I had MS. This is probably not something anyone should suggest or recommend to others just diagnosed. For myself, it turned out to be a good decision. It's a strange thing, when you tell most people they simply don't understand ...
        • Like
      • 8 replies
    • How We With MS Feel...
      When we say we can't do something because we don't feel well, put yourself in our shoes by using the examples of our symptoms below...
       
      Painful heavy legs: Apply tightly 20 lb ankle weights and 15 lb thigh weights, then take a 1 mile walk, clean the house, go shopping and then sit down - how ya' feeling now? ...
        • Like
      • 21 replies
  • Latest Resources

  • Latest Posts in Topics

    • Marina
      Wow, Peter, what an absolutely horrendous time you've had! It must've been quite frightening to have been stuck all alone like that for 3 whole days, thank goodness for your friend! I'm very glad, though, that you really enjoyed your cruise, even if was cut short, to help recover from those two awful years and all that time in hospital.   When on the cruise, were you able to go out and about and view any sights, etc?
    • ptlike
      Hi John, yep I managed to reduce my bucket list by 1 ha Best wishes Peter
    • ptlike
      Hi Marina P&O staff on the ship were fantastic, the only thing they don't do is dress you lol.  I got celulitus in my leg one year then I fell on the floor another due to shingles and ms. I was stuck for 3 days, I had kidney failure, shingles mainly on my face and head and a large pressure sore. I felt so sick I couldn't reach my mobile or landline. I was lucky that a friend rang several times, became worried I hadn't answered so rang 999, there ends my tale of woe.  How arse you?    Best wishes Peter  
    • Marina
      PS - I hope you won't mind, @Trace , if I move this to the "Lounge" section, as it would be more appropriate there
    • Marina
      Ah... Just to explain something for the sake of those using mobiles... When using a desktop browser on a computer, the name of the member who's posted is on the left of their post and not above it like on mobiles. Below their name on the left is a section that shows some profile stuff, including “Location” - but this doesn’t show on mobiles (or in portrait view on tablets) as there isn’t space for it on the smaller screens. Websites on mobiles are very often cut-down or simplified versions of what people see on desktop computers, so there might be bits that are visible in desktop browsers but missing on mobiles. For those of us on desktop computers, this is how we’d see that section below the member's name, with their "Location" if they've chosen to enter it in their profile:     That said, not everyone wishes to enter their location, so the "Location" bit may not show for all members, although one can see all profile details if one goes to someone's actual profile page (by clicking on their name or avatar).  
    • WobblyGreg
      Milton Keynes My wife and daughter go to Birmingham a lot. Or did before lockdown 
  • Latest Mood Updates

    • Trace
      Trace is now Depressed
    • Gosport Nancy
      Gosport Nancy is now Busy
    • PaulX
      PaulX is now Lurking
  • The forum's lifetime

    • This forum was born on
      16 Jul 2004, 10:20 pm
    • and has been going for
      16 years and 2 months

About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.


The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
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