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I have lived with MS  14 years ( now SPMS), I’m housebound but I’m not in wheelchair! I walk and balance a bit dodgy !! I try to exercise so I don’t seize up and I teach other warriors exercises too !! It’s great mentally & physically! It increases fitness, endurance, strength, flexibility, gait, posture, balance, coordination and mood ! Decreasing spasisity, pain, weight, fatigue!! If you have MS like me ... If your balance is not good... If your walking is dodgy... If your body is seizing up... If your symptoms are exacerbating... DO THIS, SEATED, STANDING, LYING ONLY: “Multiple Sclerosis Fitness with Jayne MSer & Warrior “: YouTube U.K. Try if you are able to 💋Big hug 💋 Encouragement, inspiration and help is all I want to give!!!!!    

Hi @MrsCB,   Duloxetine and Pregabalin are OK-ish for sensory pain, e.g. the burning, itching, pins & needles, etc. They're not so good for musculo-skeletal pain.   The different causes of pain have different treatments. The following might help :-     Pain | MS Trust MSTRUST.ORG.UK Pain   Do contact your MS Nurse to  discuss this issue further.  

Hello everybody. I have SPMS and have horrendous pain in my legs - has anyone any advice or suggestions for medication that might help? I already take Duloxetine and Pregabalin at their maximum dose.

Ah, sounds like you've fallen onto a rare endo who's OK with NDT! They are few and far between. Getting there is indeed a long slog of exhaustion. Sometimes, some people up and lower their NDT doses from time to time, too, depending on symptoms.   It's worth a shot giving NDT a go, even if it's a slow process of upping the dose by half a grain every few weeks till you reach what might be optimal for you. I know that a lot of people felt much better when they switched to NDT from Levo.   As for the foot spasms, I guess only time will tell. If they one day come back for no apparent reason, then it might be that it's a newer MS symptom for you.   Let us know, please, how you get on with the NDT if you go that route?

Thanks for responding, yes getting thyroxine right is a long process. I've never had foot spasms before they only started with levothyroxine. And yes he's suggested NDT as the next step if we can't get it right with synthetic thyroxine. It's a long slog of exhaustion isn't it. 

@Marina , it doesn't surprise me that your MS had a minor "grumble"!   The vaccine is creating antibodies and as we know, our compromised immune system doesn't like anything interfering with it.   Glad you recovered quickly.