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The MS PEOPLE UK Forum
Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.

  • Welcome to MS People UK!

     

    If you’d like to ask any questions about MS or if you want to share your experiences, please do register.

     

    We’re a friendly community where you can also chat about everyday non-MS things, have fun with jokes, discuss your hobbies, share things like music movies, make friends and more. Members also have some additional features that aren’t available when not logged in.

     

  • Want help with how to do things on the forum? See: Forum Info and Help

Forums

  1. Multiple Sclerosis Discussion & Information

    1. General Discussion about MS

      Questions, support and general talk about MS.

      5,861 topics
      59,134 posts
    2. A Survivor's Guide to Multiple Sclerosis

      How MS feels and other topics of interest. Replies only

      24 topics
      372 posts
    3. MS News Items

      News items from recent months related to MS, via RSS. Read Only

      457 topics
      457 posts
    4. MS Medical Research, Surveys, Projects and Studies

      Please see the Rules in the section before posting.

      69 topics
      318 posts
  2. Friendship & Fun

    1. The Lounge

      Chat about day-to-day things that are NOT especially MS related.

      1,646 topics
      14,436 posts
    2. Jokes & Games

      Share your jokes, games, quizzes and riddles here.

      1,141 topics
      5,984 posts
  3. Forum Info and Help

    1. 82 topics
      133 posts
    2. How To's

      "How To's" and tips on using the forum. Replies only (where allowed)

      24 topics
      26 posts
    3. Help using forum, Feedback, Wish List

      Comments, questions, etc, about the forum and how to use it.

      81 topics
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  • Spotlight

    • DLA to PIP
      Well, this morning's post brought the DWP letter I have been expecting for about two years! Yep, you've got it, would I like to apply for PIP as the DLA is ending. I feel like I might be the last person on the planet to get the letter, but probably not! Having sorted out the various requirements needed to make the initial call, and having referred to the members-only guides on the Benefits&Work site ...
        • Like
      • 63 replies
    • Talking to others about your MS
      As some of you know, I have been writing and talking about my MS since I was diagnosed in 2007. One thing I was glad I did back then was tell people that I had MS. This is probably not something anyone should suggest or recommend to others just diagnosed. For myself, it turned out to be a good decision. It's a strange thing, when you tell most people they simply don't understand ...
        • Like
      • 8 replies
    • How We With MS Feel...
      When we say we can't do something because we don't feel well, put yourself in our shoes by using the examples of our symptoms below...
       
      Painful heavy legs: Apply tightly 20 lb ankle weights and 15 lb thigh weights, then take a 1 mile walk, clean the house, go shopping and then sit down - how ya' feeling now? ...
        • Like
      • 21 replies
    • The Spoon Theory
      Christine Miserandino wrote “The Spoon Theory” as a means of trying to describe to her best friend how it feels to be disabled and not as healthy as they are.

      Although “The Spoon Theory” is about Lupus, it can apply to MS or any other such condition just as well.

      You can read it in PDF format here ...
        • Thanks
        • Like
      • 18 replies
    • The requested Gumption
      Gumption’s great! Lots of folk have loads of it, some have none. It’s essential, it’s something money can’t buy and it’s immensely valuable. You don’t just automatically have this stuff. Gumption is like a reservoir. You start off with a little and by playing your cards right you may gain a little bit more. Once you are all topped up with gumption you can tick along quite nicely. ...
        • Like
      • 4 replies
    • Letter To Normals
      Having MS means many things change, and a lot of them are invisible. Unlike AIDS and cancer, most people do not understand even a little about MS and its effects and, of those that think they know, many are actually mis-informed. In the spirit of informing those who wish to understand... These are the things that I would like you to understand about me before you judge me...
      • 8 replies
  • Latest Resources

  • Latest Posts in Topics

    • Marina
      Asking my GP surgery for a referral to a chiropodist might be a bit of a joke... it's weeks for an appointment, even a phone one. I might try, nevertheless.   If that fails, I might try the one or two ads for chiropodists in my local magazines; those who show as registered, at any rate.
    • Shirl
      Hi M   An intriguing and very necessary question... I did mine today! They've got gorgeous polish on them. It is my one luxury in life - a beauty therapist! Beauty is in the eyes of the beholder and, in my case, that means: Pedicures - your part answer to the problem Eyebrow shaping & tinting (the frames of the eye) Eyelash tinting (no need for mascara) However, your answer will come in the form of a chiropodist. Ask your GP surgery if they have a referral system. Not only is it important for your self-esteem to look after your feet but, as I am certain you know, there are health benefits too. I could tell you what implements to get but if you have an accident with one of them, the healing will not be great for you. As we (both) get older, the lower legs and feet need to be kept in tip-top condition to avoid ulcers etc.   Pete had horrid yellowing and thickened toenails. Our GP referred him to a chiropodist who took samples of his nails for lab analysis. From the results, the GP put him on a drug for six months only. He had to have regular blood tests to monitor his liver. He is fine and his feet no longer upset him. He, of course, does not have MS so he can wield the shears, secateurs and planes designed for toenails but I want you to go down the chiropodist + beauty  therapist route.   That's my advice, for what it's worth M.
    • Marina
      How do you manage to cut your toenails? It’s not that I can’t reach mine, it’s a combination of two things:   1. My big toenails are very thick and I need to use huge clippers, the type that look like huge cuticle clippers. Even with those, I have to snip bit by bit to cut the nail, which is how the pharmacist that sold them to me advised to do it, as I couldn’t possibly cut the nail in one go with anything. Then, I can’t properly get to the edge of the nail, so it ends up ragged.   2. My other toenails are just about thin enough for scissors - I’ve never been able to use those clipper things that you press down. Sometimes, it works fine; other times, the nail snaps off when I’ve only cut half-way.   In both cases, I can have shaky hands (intention tremor) or which get shakier/weaker the longer I spend on it, which makes me fear stabbing my toes with either the clippers or scissors...   And the older I get, the more curved some of my nails are becoming, making it harder still to cut them.   How do you cope? Or do you have a chiropodist that you go to or who does home visits?
    • Stumbler
      Never feel guilty. Everyone has a past, but not everyone suffers with these "hiccups" in their bodies.   Everyone struggles mentally when their body starts failing. Go and see your GP about how you're feeling mentally. There may be a requirement for a low dose anti-depressant, to allow you to start thinking positively. Having MS and being on anti-depressants isn't a sigh of weakness and is not unusual for a fair few of us.  
    • Daze2018
      Thank you both very much.  :)    I'm trying to be kind to myself but I always go back to feeling guilty, like I've done this to myself somehow without realising. Then I think back on every time I did something silly in the past like drinking too much in my youth or something. I know it sounds irrational.   I'm struggling mentally too as I don't really have anyone I can talk to where I am -- strained relationship with mum, dad currently recovering from major surgery and both live across the country anyway. I'm sorry to be such a downer but I like the look of these forums, lots of friendly understanding people which is nice. :)
    • Stumbler
      Great advice from @Shirl above.   The NHS works in its own sweet way. They don't feel our urgency for answers. But, now is the time to look after yourself. Sit down and take a deep breath. Then try and do something to divert your attention, e.g. a book or your favourite rom-com. Even pamper yourself. Chocolate and wine are good.   Try not to worry (I know, a ridiculous suggestion in the circumstances). You can't do anything about what's going on, but you may be able to stabilise it. It is medically proven that stressing releases chemicals in the brain, which are detrimental to our Central Nervous System (CNS), an area which may well be causing your problems.............  
    • Shirl
      Scary is quite a mild response to the uncertainty of a MS investigation. I went from petrified to curious to accepting and back to scared several times a day in the first few years. Even now, I fond the variability of symptoms irksome (being polite!)   Not only will you be confused by the whole drama but you are also poorly - something Neuros are prone to overlook! Just keep plugging away without allowing total fear to overtake you. One day at a time... it is all you can do. 
    • Daze2018
      Thank you ever so much for your response!  I'll go and check out the links you provided.   I'm really sorry if I come off as a bit of a worrier, this has been a scary 7 months. I'm so sorry your diagnosis took 11 years, that's quite a long while. And thank you again for your response. :) 
  • Latest Mood Updates

    • Marina
      Marina is now Tired
    • Shirl
      Shirl is now Creative
    • WobblyGreg
      WobblyGreg is now Thinking
  • The forum's lifetime

    • This forum was born on
      16 Jul 2004, 10:20 pm
    • and has been going for
      14 years and 4 months

About Us

Founded in 2004, MS People UK is a non-profit website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The community atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.


The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
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