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The MS PEOPLE UK Forum
Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.
  • Welcome to MS People UK!

    Looking for support about MS? Would you like to help others with MS? Please join our friendly community.

     

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Forums

  1. Multiple Sclerosis Discussion & Information

    1. General Discussion about MS

      Questions, support and general talk about MS.

      5,951 topics
      59,742 posts
    2. A Survivor's Guide to Multiple Sclerosis

      How MS feels and other topics of interest. Replies only

      26 topics
      375 posts
    3. MS Medical Research, Surveys, Projects and Studies

      Please see the Rules in the section before posting.

      79 topics
      330 posts
  2. Friendship & Fun

    1. The Lounge

      Chat about day-to-day things that are NOT especially MS related.

      1,658 topics
      14,520 posts
    2. Jokes & Games

      Share your jokes, games, quizzes and riddles here.

      1,144 topics
      5,993 posts
  3. Forum Info and Help

    1. 83 topics
      134 posts
    2. How To's

      "How To's" and tips on using the forum. Replies only (where allowed)

      23 topics
      24 posts
    3. Help using forum, Feedback, Wish List

      Comments, questions, etc, about the forum and how to use it.

      82 topics
      744 posts
  • Spotlight

    • Taking medicines abroad
      I try and go abroad at least once a year and, in the past, have given little consideration to just how I carry my drugs with me. We always used to take a pill box and set out the meds on a day-by-day schedule. One problem with this is that drugs should be carried in their original packaging. I've never had much of a problem but, more recently, realised I should be paying a bit more attention to the formal ...
      • 8 replies
    • The Mountain Poem
      This poem, originally written for mental health, could also apply to Multiple Sclerosis where fatigue and pain are invisible and helps explain how we may cope with it.
       
      If the mountain seems too big today,
      then climb a hill instead.
      If the morning brings you sadness,
        • Like
      • 1 reply
    • It's never too late...
      I was reading some MS news and I thought: “It's all too late for me.” Then I remembered how HARD I've been working on my negative tendencies and how SUCCESSFUL that has been, so far. MS challenges us every day. For me, it is never too late to work at being positive and to learn a new skill with whatever abilities I have left to use. What positive aims and goals do you have?
        • Love
      • 8 replies
    • DLA to PIP
      Well, this morning's post brought the DWP letter I have been expecting for about two years! Yep, you've got it, would I like to apply for PIP as the DLA is ending. I feel like I might be the last person on the planet to get the letter, but probably not! Having sorted out the various requirements needed to make the initial call, and having referred to the members-only guides on the Benefits&Work site ...
        • Like
      • 102 replies
    • Talking to others about your MS
      As some of you know, I have been writing and talking about my MS since I was diagnosed in 2007. One thing I was glad I did back then was tell people that I had MS. This is probably not something anyone should suggest or recommend to others just diagnosed. For myself, it turned out to be a good decision. It's a strange thing, when you tell most people they simply don't understand ...
        • Like
      • 8 replies
    • How We With MS Feel...
      When we say we can't do something because we don't feel well, put yourself in our shoes by using the examples of our symptoms below...
       
      Painful heavy legs: Apply tightly 20 lb ankle weights and 15 lb thigh weights, then take a 1 mile walk, clean the house, go shopping and then sit down - how ya' feeling now? ...
        • Like
      • 21 replies
  • Latest Resources

  • Latest Posts in Topics

    • Shirl
      Well @Stumbler it hasn't dented your GSOH! My arm hurts now. I'm being rather precious about it considering what I went through last year!   We keep rolling along, getting nowhere in particular but deeply grateful for loving our home and each other. What else is there in life other than the obvious deprivations!    
    • Stumbler
      I had the Oxford AstraZeneca. Well, I think I did.. With the lack of after effects, perhaps I had a placebo........  
    • Shirl
      Hi All I had mine on Wednesday. The NHS experience was brilliant, a consortium of 4 GP surgeries, including our own. I even had one of our GPs do my jab. Since then, I was unwell all night long Wednesday - hot, restless, could not sleep, awful headache. Yesterday continued in the same way. Then last night I slept like a log and woke this morning fresh and happy! But my arm now aches and feels heavy. @HairyPete had his two weeks ago and was exactly the same, possibly more feverish. We both had Oxford AstraZeneca but he does not have MS. We are BOTH very glad to be on the road to some kind of normality, eventually, we assume! Waving to you all 👋👋        
    • Marina
      That's fantastic news for both of you! Do you know which vaccine you were given, and have you been given a date for your 2nd jab?   I'm in group 5 (65+ yrs-old) and not on any DMDs as I'm SPMS, so hopefully it shouldn't be too long before they start on my group next.   Michelle, I'm sorry you had what sounds like an awful reaction but glad you're over it now. Thanks also for your kind words about what has now become a really quiet forum!
    • Stumbler
      @Michelle7070 , the vaccination team came and got me a couple of weeks ago too.   I wasn't expecting to be called anytime soon as I didn't consider myself as vulnerable. I had a phone call on the Monday, asking if they could come round the next day - I'm housebound. I was so shocked that I just agreed and didn't think to question anything.

      I was jabbed by 09:00 the next day. No ill effects, just a mildly sore arm.   It's an impressive operation by the NHS.  
    • Michelle7070
      I just wanted to say that I am currently having the Ocrevus treatment and am over 50, so I was given the opportunity to have the Covid Vaccine, which I was so pleased to have.   The NHS are amazing for the system they have organised to make this a safe and speedy operation.   As for the vaccine, I have to say that I suffered quite a horrible headache for about 4 days and my body felt like it had been 10 rounds with Mike Tyson, but all said and done, this was nothing compared to what may have been the symptoms should I have contracted Covid.   I wanted to write this as there seems to be so much negativity around the whole situation, the way that I am looking at it, is that I am here, I am able to have dinner with my husband and chat to my children and am looking forward to welcoming my first grandchild into the world.  This seems very mundane, but they are the things that make me smile and appreciate being alive.    I hope that everyone that is on here, is keeping safe and avoiding this awful virus.   Sending positive vibes to you all, thank you for the chat and information that has kept me sane through not only this current situation, but also through my MS journey so far.  Keep up the good work everything you post and your replies are so valuable.   Michelle
  • Latest Mood Updates

    • Trace
      Trace is now Depressed
    • Gosport Nancy
      Gosport Nancy is now Busy
    • PaulX
      PaulX is now Lurking
  • The forum's lifetime

    • This forum was born on
      16 Jul 2004, 10:20 pm
    • and has been going for
      16 years and 7 months

About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.


The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
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