hello everyone........i havnt been diagnosed with ms..but am having test.....the one where they put the needles in your muscles !! - anyway yesterday,my legs went completley weak and shakey,litteralycouldnt bear my weight,but subsided after about 1 hour,but then felt really weak the rest of the night......and today the muscles in my thighs are so tender,like ive run a marathon,anyone had this ?
Hi, I was registered on this site some years ago. I have been experiencing problems for 8 years now but am currently undiagnosed and I don't necessarily think it's MS I have but would value your opinions in whatever area.
I went through the neurologist 5 years ago with not the greatest experience. After and MRI and Nerve Conduction Studies revealed nothing, the consultant, running late just revealed that info and then dismissed me telling me to just take Amytriptline and increase the dose as and when things progressed. I've now been on them since.
I have been very reluctant to go through the investigation procedure again after that outcome as I was left to feel I was making a fuss about nothing but in the last few years the problems have become more difficult to ignore.
I started out with just right sided facial pain but since have developed right sided pain all over my body.
I have various issues with stabbing pain in my eye, arms, hands, legs, feet. Numbness in feet and fingers, distorted vision and weakness on my right side. My writing has become terrible as I don't have the strength to control the pen properly. Even typing this makes my hand and arm feel 'tired'.
The attacks have become more frequent. I kept thinking I was coming down with something, was so tired I could just sleep where erver I was - my desk included! Had pain, weakness etc. It was only because I would say to family when I felt ill that they commented that it was way too frequent and there were no cold or flu symptoms.
There are many other problems including depression, confusing my words, forgetting my words, constipation - nearly always.
So after a 3 week attack I went back to the doctor - thankfully not my usual one who last said ' you'll probably never know what is wrong'!
This one has been amazing, said she would start at the beginning again. She did loads of bloods which only revealed a low iron count which I wasn't willing to take supplements for due to the constipation I already suffer . She then sent me for some more blood tests including ANA's. This returned a positive result!
However, further definitive tests were negative so they said it was likely to be non-specific.
I have now been referred to neurology again for more investigations following this result.
I have just come down with a cold as several of my family have only I can barely stay awake and the pain in my legs and ankles and face make me just want to curl up.
I'm an active 'won't be told not to do things' kind of person so I am hating these restrictions I am starting to face and am scared stiff of having something that is getting progressively worse but also scared I will be dismissed by the neurologist again.
My sister was recently diagnosed with Lupus which may or may not be relevant?
I am really just looking for anything any of you can relate to or anything you know about positive ANA's but negative others test and my symptoms and ... well I think I've bleated on long enough! If any of you are still awake at the end of this I'd really love to hear from you.
I know I probably don't have MS so am intruding a bit but I remember how great you all were before and really need some advice from people in the know and to be honest, I think my family are completely bored with me saying I don't feel well and going on about my pains so I try and keep quiet now and get on ... but that's getting harder
Thanks again.
Katie
appointment with ms nurse went really well.she said symptons could just be because of bladder infection,which i think if i remember stumbler said as well,which could take weeks or months to get back to pre infection state.she also said it could be a relapse ,and is too early to say,and we chatted about steriods,so its a waiting game about that.we also discussed my mood.she said it could be possible damage to the frontal lobe of the brain,as i already have had tests about my cognitive ability and having cognitive therapy for that and its the same part of the brain that deals with mood,so she has written to my gp about that ,as she believes i have depression,whether or not its directly linked to the ms ,no one will really know.and finally it would be in my best intrest to start using a wheelchair,when the ms is really bad,having probs getting my head around that one !!!! thank you guys for all your support. tc xx
I read in the current MS Matters letters section a complaint from a Blue Badge holder a complaint about the use of Blue Badges.
The gist of the complaint was that the lady thought that Blue Badges were only for wheelchair users and that other users are not entitled to use them.
As a Blue Badge holder who is not wheelchair bound, I am surprised, and disappointed. I understand that it must be frustrating for wheelchair users not to be able to find a disabled parking bay when they need one, but no more frustrating than it is to find disabled bays full but ring used by non Badge holders.
Am I the only person who thinks that this attitude is unreasonable?
I have a skin infection. Also they think I have an allergy or maybe photosensitivity. Will need to be referred to Dermatologist. My mouth is full of ulcers and cannot eat and my skin is very dry, so moisturising every hour. I am on a weeks worth of steroids prednisonen and steroid cream , lots of creams and anithistamines. Other than everything is fine n dandy..lol, have to laugh or I cry. Hope you are all feeling better than I xxxxxxxxxxxxx
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