Is anyone using LDN or Padma for their ms?

[annwatson]

Hi Everyone,

Is anyone using LDN (Low Dose Naltrexone) for their MS? I have heard that in the US and here that it is showing good results in reducing relapses and improving symptoms. My GP wont prescribe it but I have been given the name of a GP in Glasgow that will provide it privately. I have heard about it in MS publications and have got in touch with a lady who takes it herself for her MS and is trying to get trials done in the uk. She finds it has made a huge difference to her. I have also e-mailed a doctor down south who has MS and is taking it himself. Some GPs will prescribe it but it is usually given to Heroin addicts in high dose (300mg) MS patients only need 3mg or 4.5 mg. There is a website which you can get some information at www.ldnresearchtrust.org alos my phoning 0871 989 9666 if anyone is interested. I was wondering if any of you guys had heard of it or were taking it as I am thinking of trying it and am looking for some advice!!!

My consultant is thinking ot starting me on betainterferon but I though this might be worth a try first.

Is anybody taking the herbal supplement PADMA? I was told by my local health food store that this swiss herbal fromula is very good for MS. Does anybody have any good results with this?

 

Luv Ann

[ddgorgeous]

Ann,

 

I am not taking LDN yet, but see a Doctor Gilhooly in Glasgow at the end of this month and should be on it after that. I will be posting a daily diary after that to keep a record of how it goes.

 

Getting a prescription for LDN does appear to be a problem and finding a Doctor who will prescribe it can be hard. Linda at the LDN Research Trust http://www.ldnresearchtrust.org/ is also a visitor to this site as 'Linda Ann' and is full of good information on getting LDN. It was Linda who put me in touch with Dr. Gilhooly and he has developed the Delta 5 diet which does make a lot of sense to me. His advice regarding increasing Omega 3 while reducing Omega 6 does appear to have some merit and might be worth investigating further.

 

I have a fair bit of information that I have gathered on LDN if you are interested, just send me a mail with your email address and I will be happy to pass it on.

 

Although it does not appear to assist everyone and is by no means a miracle cure, LDN might help to slow down the progression of MS and in some cases actually reverse a few of the problems from what I can gather.

 

Take care and best wishes,

 

Ron

[Hils]

Hi Ann and Ron,

 

I'm glad you've brought the subject of LDN up. Its something I have been pondering for a while now, read a bit about it, but not done anything more as yet.

 

As we wait for the goat serum, it certainly might be something to seriously consider.

 

Ron, you will be starting it soon? You are ppms I think? I will be hugely interested in your experiences with it. As you say, it may not help everyone, but the anecdotal evidence I have read seems to show it does help some.

 

A daily diary is a BRILLIANTidea, and I for one will be reading it avidly. Good luck with it, I so hope it works for you.

 

Hils

[juliamitchell65]

Hi

 

I am on LDN.

 

been taking it a month, without the neuro or GP's permission, so i had to go the private route and pay for it myself.

 

Not as hard as it sounds, and the aformentioned Linda helped me along.

 

I have a daily diary on www.ldnresearchtrust as i've been taking it around 34 days now.

There are also others doing diary's at various stages of treatment.

 

My neuro was so impressed with it after me taking it a month he asked me if i was the same woman!

 

he is now VERY interested, considering the cost is negligable if it works. He worked out around 10p per person per day.

 

My neuro is now emailing Linda, Dr Alisdair Coles at Addenbrookes (who has been collecting LDN info and survey results for 3 years) who is also a personal friend of his and wants to contact the ethics committee at my hospital to arrange a trial.

 

Now my neuro, after seeing me with his own eyes, has agreed to give me LDNon the NHS, as soon as he learns what to write on the prescription.

 

If anyone needs any further info, i'd be happy to help

 

Julia

[popsie]

Ann

My name is Trish and I live in Sydney. I have had SPMS for 15 years but nonetheless I have seen many improvements since taking LDN.

 

After 7 months on LDN I had numerous improvements in different areas: 1 Flexibility of leg, first improvement which started after 2 weeks on LDN (3.00mg), the other improvements followed gradually, at first only in the middle of the night (after taking LDN after 9pm) now all day as well