Padma 28

[Catherine]

Hello

 

I have been reading about a Tibetan herbal remedy called Padma 28. It appears to help people with Relapse and Remission MS and I wondered if anybody knows something about it or has personal experience of the remedy.

 

Have a great weekend,

Catherine

[ddgorgeous]

Catherine,

 

I have never heard of it, but I am quite intrigued now. Please post anything about Padma 28.

 

Take care and best wishes,

 

Ron

[Catherine]

Hi Ron

 

This is what I have read so far:

 

"A commercial herbal product called Padma 28

[ddgorgeous]

Catherine,

 

The statistics about Padma 28 seem to be very good, I will see what I can find online about this, please post anything you come accross.

 

The mercury fillings: Please look into this carefully.

 

A member of this forum who has a very close relative who is a Dentist seems to be in some doubt about having fillings removed (the member has not been around in about 2 months now and has not replied to any email I have sent. Hopefully she will be back soon).

 

Apparently to remove fillings would disturb the filling to such an extent, the amount of mercury absorbed into the bloodstream would be a lot greater than just leaving them in place.

 

I asked my own dentist about this four months ago. His opinion was that unless they were extremely large fillings and there werre a lot of them, it would not be advisable to have them removed.

 

I have three small old style fillings and have decided to just leave them be for just now, but my own dentist's opinion has got to be viewed with a certain amount of suspicion as he was the person who originally put the fillings in when I was a child.

 

I am curious about any link and cannot seem to find very much information on it. One link about it is here http://www.drhuggins.com/default.asp?PageName=Home%20Page It is in the USA, but it might help with some information.

 

Take care and best wishes,

 

Ron

[Catherine]

Thanks Ron, that information is very useful. I have 3 or 4 large fillings and several other small ones (I eat a lot of sweets!), so I might just have the large ones removed. The thing is, they don't last forever (I have already had a couple replaced with white ones as the mercury ones have come loose - too many toffees?) so I might as well see if my dentist will take out the rest. I am seeing him on Wednesday, I will let you know what he says.

 

I also have an appointment with a Neurologist at my local hospital next Monday (the National have referred me as they are not prepared to pay for the DMD's they recommend I take), I will ask him about Padma 28 - should be a laugh as my experience of Neuro's is that they are not keen on alternative medicines!

 

Best wishes,

 

Catherine

[ddgorgeous]

Catherine,

 

Good luck on Wednesday.

 

My own experiences of Neuro's have not been very good, along similar lines to scraping something unpleasant of a shoe!...............but I am sure there are good ones around. Maybe one day I will actually meet this rare breed!

 

Take care and best wishes,

 

Ron

[Michelle]

Good Luck for Wednesday... Will be interesting to hear what the neuro says......

The neurologist that I am seeing on Friday is also a lecturer in neurology. I wonder if that makes him a good neuro or a neuro who spent too much time in Uni ? I must say that he did seem rather nice and treated with some degree of respect,when i saw him on the ward.

I am going to ask him if he thinks massage would help me, and can I get it on the nhs,lol.

I might have missed an early thread. So excuse me if I am asking something that's all ready been stated. What does the herbal med do for you? Is it only benefical to people affected by MS?

 

Michelle

[Michelle]

I have noticed that my spelling is getting worse

Since when as 'already' been written ' all ready'

 

Excuse me folks

 

Michelle

[Catherine]

Hi Michelle

 

Padma 28 is made up of 18 different herbs and is supposed to help circulation, vascular disease and the general immune system. It is manufactured in Switzerland and is supposed to be particularly good if you suffer a tingling sensation, a feeling of heaviness and tension in the legs and arms, numbness of the hands and feet and calf cramps. I might suggest my dad tries it, as he has vascular disease - the more I read about it, the more I am keen to try it!

 

Best wishes,

 

Catherine

[Michelle]

Hi Catherine,

 

Does it contain Rosemary? I ask this because I am allergic to that particular herb.

It sounds very interesting..

 

Love Michelle

[Catherine]

Dear Michelle

 

No Rosemary, here is the list:

 

Each tablet contains: Saussuria 40mg, iceland moss 40mg, margosa 35mg, myrobalan 30mg, red sandalwood 30mg, cardamon 30mg, allspice 25mg, bengal quince 20mg, potentila golden herb 15mg, licorice 15mg ribwort 15mg, columbine 15mg, knot grass 15mg, cloves 12mg, gingerlily 10mg, heartleaved sida 10mg, valerian 10mg, wild lettuce 6mg, marigold 5mg. Other ingredients: sorbitol 73mg, calcium sulphate 20mg, silicium dioxide 12mg, camphor 4mg.

 

An interesting mix!

 

Best wishes,

 

Catherine

[Michelle]

O'er Sorbitol... That's ok if you can put up with the laxative affect. Have you tried them Catherine?

Lets us know if you if do....

 

Thanks for the list.

 

Michelle

[ddgorgeous]

Catherine,

 

Did you try Padma 28?

 

It sounds very interesting, especially the help for circulation/tingling.

 

Ron

[Catherine]

Hi Ron

 

No, I haven't tried Padma 28 yet -but I am still considering it.

 

I have finally been allowed to have DMD's - after waiting 8 months. I was wondering which to have, I'm not keen on needles so Avonex seems to be the best - just a once a week jab in the bottom! Has anyone got an opinion on the different ones?

 

Also, I was asked if I wanted to take part in a trial for Teriflunomide - a tablet form of DMD. The commitment you have to make when you take part in these trials is astounding. You sign up for two years, you have to visit the hospital every other week, have MRI scans, ultra sound scans and loads of blood tests. I never really appreciated what happens in these trials and so I say a very big THANK YOU to anybody out there who has taken part in a trial.

 

Best wishes,

 

Catherine

[ddgorgeous]

Catherine,

 

I only have a sec, but on the MS Trust website there is a downloadable sheet about DMD's in the publivcations part. I doubt any brand new DMD's might be there ye, but it lists a few.

 

Ron

[Catherine]

Dear Ron

 

Thanks very much for the info. I was given a booklet by the MS team at the National which is published by the MS Trust. It's been very helpful. I think there is also a web site which may be called 'MSdecisions.co.uk' or something like that. I think you can down-load video recordings of interviews with different people who take the different kinds of drugs. I shall have a look at that. There is quite a lot of information out there, thank goodness for the internet!

 

Have a great weekend,

 

Catherine

[ddgorgeous]

Catherine,

 

Maybe having frequent tests etc could be good. I asked my Neuro about a second MRI scan to know what kind of progression there had been as it was 5 years since the first MRI scan, but was told it was a diagnostic tool and since I had been disagnosed, there were other cases that needed an MRI more and a second MRI scan would not happen.

 

It might be good if you are being monitored closely. The constant check-ups etc would be a pest for a long time, but so many people appear to be left to their own devices for anything, it might be to your benefit to keep the Neuro's interest etc.

 

It might be worth thinking about it and not making an immediate decision that you may regret. I do not know for sure in any way, but to say 'no thankyou' might be seen by some Neuros etc in a negative light. If you were to change your mind, how would it be taken? and would you be put on the back burner for anything else?

 

I would try and speak to your Neuro or MS Nurse about different scenarios and prepare some questions to ask them.

 

Ron

[Michelle]

I think it would be excellent if we could have more MRI scans to see how the lesions are progressing or not... I guess it all comes down to money at the end of the day.. From what i have read Ron they seem to use the MRI in study cases with MS.. I wouldn't mind doing that if there was such a trial.. Is there any trials going on at mo?

For me personally i would like to see what effect the steroids treatment has had on the multi focal white matter lesions in my brain and lesion on my spine..

 

Love Michelle

[ddgorgeous]

Michelle,

 

To be told there is no further test and no follow up seems very strange. I would think it is all down to money, but since the MRI scanner is only used for 6 hours a day in many hospitals, it does seem a little strange that the hospitals all want more. It would seem a much better move to have more trained staff to use the existing MRI scanners to nearer their maximum potential.

 

Ron

[Michelle]

I agree Ron. It does seem strange....

The scanner at my local hospital is ancient though.. It's used a great deal. If i won the lotto I would buy them a new one.. I would ideally like to go to our leading hospital in Wales if i was to have the choice and have all my treatment carried out there.. I went there when i was treated with the steroids.. it's a much better place to be treated...

Catherine, I wish you all the very best with your decision..I would opt for the once a week injection Do they inject you or can a partner learn how to administer it?

 

Love Michelle

[Catherine]

Hello

 

I talked about the trial for the tablet form of dmd's with my GP, he was excellent - talked me through all the pro's and con's and didn't try to influence me. I have decided to stick with my decision as although I can see why continuous check-ups may be useful, I can't see that I will have anything to gain by knowing that I have more legions or not. My employers have been excellent so far, but I wouldn't want to push my luck by having half-days off every other week, particularly as it isn't vital. If the trial was taking place at the National, which is just 10 minutes up the road from where I work, I would definitely do it. But Tooting is quite some distance from both where I live and where I work. It's a shame as I would have liked to have helped with the trial. I didn't get the impression that I would be treated any differently at the hospital becasue of my decision. I have spoken to the hospital's MS nurse and she was fine, really lovely in fact.

 

Anyway, I have to have 4 blood tests before I can take the dmd's, so I have scheduled an afternoon off on Friday to see the nurse and recover afterwards!

 

Have a good week,

 

Catherine

[Michelle]

I am glad you have come to a place where you have been able to make your own decision Catherine..

I hope it goes well for you!

 

Love Michelle

[Bobby]

Good morning , I've been trying Padma 28 for the last week, so far not much noticable change ( Apart from 'bad wind' , but then I've never had 'good wind') on 2 tablets 4 times a day, will keep you informed. B