Radiotherapy

[jayjill]

Hello all. I have a question for those who have had radiotherapy like me. I had a course three years ago following breast cancer. Since then, symptoms have increased so much that I now need a power chair and a riser recliner. I used a walker before. I don't mean to upset anyone who is due to have radiotherapy but I think it is good to be informed. 

Jill

[Stumbler]

@jayjill , there isn't much activity here at all, unfortunately.

 

Personally, I haven't had to endure any Oncological therapy so I have no experience to call on.

 

As for SPMS, yes, the b*gg*r does seem to progress. It seems to "enjoy" your body trying to deal with any other restorative functioning. For me, it's always related to UTIs. They completely floor me which leads to hospitalisation. Recoveryfrom infection is fairly quick but just a few days off my feet is not so easy to resolve.

 

I too have become very good friends with my wheelchair unfortunately. But, I still make efforts to try and recover physically.

 

I can imagine that Radiotherapy can "knock the stuffing" out of you. And this can take a real effort to return to your baseline. But, never give up. Core and leg strength can be improved. Pilates is especially good for core.

Maybe discuss some specific therapy with your MS Nurse?

 

[jayjill]

Thanks Stumbler, good to hear from you. Sorry about the UTIs. I take betmegron (I think it's called) which calms an overactive bladder. I try to drink a lot of course. Yes I think the radiotherapy has really messed with my body, confirmed by recent MRI. I'm seeing MS nurse soon so can discuss all this with her.  Good thing is, that I feel fine in myself. We are more than these bodies thankfully! 

Jill

[Stumbler]

@jayjill , I gave up with the anti-cholinergics and now have a SupraPubic Catheter. I call it my inconvenient convenience, which has reduced the incidence of UTIs.

 

I also take D.Mannose, a supplement, clinically proven to cut the recurrence of UTIs.

 

We may be more than our bodies but we are born to evolve.

 

Take care, Jill

 

[jayjill]

You too 👍🙂