Just a quick(ish) hello to all.

[mark1066]

Hi everyone. Not even sure whether I should be posting on your forum but I am slowly getting at my wits end and I suppose like lots of people I am just looking for answers. Long story short(ish) for 5months now I have been 'numb' (I can feel a pinch or jab but feel like something draped over my skin permanently) from my little pinkie toe on my left foot up my left side and arm and down the left side of my back. This 'numbness' gets more intense in direct sunlight (not that we see a lot of that) and after a bath.

 

With the onset of this, on the same day, came what I described in the beginning as strange vacant episodes where I would be totally unable to interact with my surroundings but for the most of the time I was aware of what was happening. These would be daily, sometimes several times a day. This has since been diagnosed as Epilepsy for which I have been prescribed medication (and lost my driving license).

 

All this was checked out at A&E but was sent home having been told I had probably had a viral infection at some time and all would be well in a few days or so.

 

I had a brain MRI quite quickly on referral which came back clear. I have since had a MRI of the cervical and thoracic spine (neck and top of spine I think). The result of that came today: No significant abnormality. Whatever that means.

 

The only other things that have happened lately are an intense acute pain in my left eye, but no vision problems. This normally happens every 2-3 weeks and lasts for a few days at a time and I have had this several times in recent years. Then about 2months ago I went for an eye test at the opticians and when looking at a sheet of graph paper a proportion of it was all wavy with my right eye.

 

I have no history of epilepsy or any major illnesses in my family but what i find really strange is the neuro told me categorically that the seizures and numbness are totally unrelated even though they came on the same day!

Obviously I am not looking for any miracle diagnoses but I think I am just looking for some simple advice and perhaps hopefully someone who may have perhaps experienced just the smallest thing similar to the strangest 5months of my life.

 

Many Thanks for listening!

 

Best Regards

 

Mark

[debzsanderson]

I don't have any real advice but just wanted to give you a warm

Unfortunately a diagnosis for Ms is so different for each individual and can often take a while to come up with a definative answer. I hope you find this site helpful and you'll definately get a lot of support and advice here.

 

debz xx

[Michelle]

Hi Mark and Welcome,

I have included a link for you to look at. My eldest daughter suffers from epilepsy and to be honest I wouldn't be at all comfortable with the information that your neurologist has given you. I think it wise to put yourself in touch with a epilepsy nurse via your g.p. I would have thought that your neuro could have done this for you.

I know for a fact that you can suffer from numbness when you suffer with epilepsy. Getting the right support for your condition is important: That way you can manage the condition.

Maybe a chat with your g.p would help? Tell him/her of your concerns and ask to be referred to a epilepsy clinic and eye specialist.

Let us know how you get on.

Michelle

 

 

http://www.epilepsynse.org.uk/pages/info/l...ts/seizures.cfm

[mark1066]

Hi and thankyou both for the welcome. Thanks for the link Michelle. Do you think it would be possible for the numbness to hang around for so long if it was maybe linked to the epilepsy? Got an appointment with eye specialist end of this week and a follow up appt. 2weeks later so will let you know how I get on.

 

Thanks Again

 

Mark

[Lindyloo]

Hi Mark

 

I hope you feel better soon... Its a horrible place to be right now .. there are some great people here with lots of good advice..

That feeling you describe.." something draped over your skin" its like a numbness but not numb...its like a loss of sensation... I get this... At the moment i have it at the top of my leg and going down as far as my knee... I had it before and it went away... so try not to worry and dont be afraid to tell your doctor your worries... We are all here for you..

 

take care and keep n touch

[Hezza]

Hi Mark,

Just adding my to the rest. Sounds like you've had a weird & worrying 5 months - you've come to the right place now whether you want to rant or just have a laugh.

 

Good to have you on-board!

[KayJay]

Hi Mark

 

Welcome to you too.

 

As I am new to my symptoms which have been ongoing for several months, I do not feel qualified to offer any advice, but can offer sympathies for the place you are at right now, it is very difficult for you I am sure.

 

I am still wading through the huge amounts of valuable information on the site, but my brain fog is not allowing me to process information that fast, but I will keep reading.

 

I hope you soon get some answers Mark.

 

Best wishes

Karenx

[clare]

hi and welcome

 

hope you get some answers soon

[Shaz]

Hi Mark,

 

from me too.

 

Good luck in finding your explanation for the past strange 5 months.

 

Shaz

[Gaynor]

Hi Mark & Welcome to the forum

 

Glad Michelle has been able to help you out a bit more on the epilepsy side of things and I'm sorry you're going through uncertain and frustrating times right now about what is going on with your many symptoms.

 

I hope you get a bit more joy with your eye appt this week,

all the best with it,

 

Gaynor

[Shirl]

Just adding my own - I've been away from the forum a few days, only popping in quickly from time to time. I am go glad our regulars (especially mish!) have helped you and hope the appointment this week is helpful.

[mark1066]

WOW!!! Thanks for all the warm welcomes everbody! Looking forward to chatting on the forum with you all.

 

Thanks Again.

 

Mark