Hi Everyone
I first asked a GP about my symptoms back in the late 80s and he told me he suspected a central nervous system disorder after doing the usual neurological tests GPs can do. He referred me to a neurologist.
The neurology appointment and consultation arrived early 1991 and he repeated the same tests the GP had done then said he was all for sending me for further investigations. He then asked me to wait in his side room while he took a look at my medical notes in case he missed something.
After 10 minutes or so he told me that after reading my notes he had decided that since all my symptoms were most likely due to mental health issues (anxiety because I was mum to 2 children with special needs),he felt further investigations weren't needed. I would no doubt get the same response now as I am currently caring for my husband who is terminally ill.
In the 30+years since, all of those symptoms have got a lot more noticeable and others have been added.My current GP knows about the new symptoms but I'm still know nearer getting a diagnosis than I was 30 years ago.
I have had friends accuse me of malingering as I have no diagnosis (dumped friends now) and when I was in a coma following a cardiac arrest four years ago, hospital staff told my husband and my son on different occasions that they thought I was a hypochondriac. I can only assume that this is on my medical records as I hadn't talked to any staff at that point.
I am currently working from home as a writer and also run a bunch of on-line stores so it's not like I am just a lazy so and so.
I'm really posting to say that acceptance without fighting for a diagnosis has simplified my life so much and I am a much calmer and happier person for doing this.
I've just fiished writing this piece on whether MS is autoimmune.
It was a lot of work so I hope it'll make some difference:
http://www.mult-sclerosis.org/blog/
Festive greetings to you all,
Paul
I returned to Bradford NHS (and their new MS specialist Neuro) this year, after having been at Halifax NHS as there were no appointments available for 9 months at Bradford 5 years ago. At my first appointment I said, when asked, that I had an open mind regarding treatment, and I was told that I would be referred to Leeds NHS. Sure anough a month later an appointment letter landed on the mat, and, as it is next Wednesday at Seacroft Hospital, my busy mind has been wondering. As usual, I needed to know as much as I could about it, and it sounds like a great hospital, but can I find any information in the public arena, apart from that is where the MS services are in Leeds, and one of my Facebook friends goes there?....nope, not a suasage
Hi.
The MSDECISIONS website suggests that use of interferon beta therapies can slow the progression of the disease.
This seems to be in discord with the findings of the recent Shirani report.
Who is right? What is the evidence used by the authors of the msdecisions website?
John
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