Hi guys.
I am a 25 year old male who has made the fatal mistake of googling my symptoms. I am now terrified and losing sleep. Im a working professional and around 10 weeks ago had quite tender eyesight, like straining and my peripheral vision appeared to be moving, there was also some light sensitivity. No loss of vision or colour though. I did have a severe fungal skin infection at the time which has since cleared and my vision returned to normal and I put the vision down to this.
I had noticed inbetween, a quite sudden onset of frequent urinating, i used to go maybe 3 times daily, that has at least doubled.
Around 3 weeks ago I developed a numbness type sensation in my foot when working nights, almost like not enough blood was getting to it like poor circulation, and my leg felt weaker than it actually was, I had no reduced movement or strength in it. A few days later, it develope dinto my arm aswell, i have had a very slight tingling in my finger tips and what I can only describe as a dead arm, like ive been punched.
Every day, its somewhere different, either left leg, left arm, right leg, right arm, varying from being sore, to aching to burning. I have also noticed some minor twitching in my left and right biceps.
The very worst symptom though is feeling dizzy, its not horrendous, I just dont feel "not dizzy". I had bad vertigo last week, whereas now it is just general a little dizzy and I crash into things
I know you guys arent doctors, I saw my GP initially who said he thought it was a virus as I had signs of virus in my throat, but since then I have developed the dizziness and weird sensations. However this has all come on in just under three weeks, and is getting worse. I just wondered (bar the eye issues) would MS come on so quickly?
I am struggling to sleep and driving my wife mad worrying about it.
Thanks in advance
Andy
Hello to all. I hope you are all as well as can be.
I've just been diagnosed with Clinically Isolated Syndrome. Had all the scans and tests back in January, when I was admitted to hospital. I also have L'hermittes syndrome. Dr reckons it will be diagnosed as MS, as i have transverse nyelitis and brain lesions. Sorry if my spelling is off.
This feeling of pins and needles in both legs and one hand is just hacking me off, as it seems to take so much effort and energy, just to try and get on with life. Very tiring at times.
Just thought I would come on here and read up as much as possible. See if there is anything I can do, to help overcome this.
Still trying to look on the bright side of life, but still very frightened at the mo, a feeling that has only hit me in the last couple of weeks. Think I believed it would have passed by now.
Promise not to come on here and whinge, but I know from experience that support from people who understand, can be a very useful aid.
Thanks one and all. Take care
Morning all, hope you are keeping well in the bad weather. We have snow, then ice then more snow on top. Great for unsteady peeps like me!
Just wanted to drop a quick note to say I took all your advice and eventually took the plunge to go back to the GP. I saw the neuro in early November, and since then have had MRI (he said this was unremarkable) and an LP which was negative. However, my symptoms are getting worse, apart from a respite from fatigue which has been much better. And I've had new symptoms too. The neuro sent a letter saying everything was clear and he hadn't arranged a follow up.
I went back to see GP on Wednesday, and she read through the notes and said she couldn't understand the fact that no follow up has been made. My notes from neuro apparently say he saw signs of demylenation in the neuro exam (GP said this was posh way of saying its MS!), but this wasn't mentioned on letters to me
GP went through what symptoms I'm having now and what had happened to date and since neuro appt and both she and trainee GP agreed they think its RRMS! She said it's affecting my day to day life and limiting what I can do, therefore it needs reviewing further and a definite diagnosis being made. She also said it's completely unfair for the neuro to tell me he thinks I have MS and then do only 2 tests and decide there is nothing else to do. As the GP put it MS is complex and they need to build up a picture of symptoms etc, and there are other tests they can do to confirm diagnosis. She is going to write to the neuro with update and ask for further appointment and poss VEP and whatever else they can think of!!
So glad I went back - I was beginning to think I was losing the plot but GP says neuro saw evidence too, so hopefully will maybe get some answers soon. And at least if they decide it's not MS after all they might agree on what is causing it and give me some treatment.
Will keep you posted, but thanks again for giving me the courage to go back and keep fighting for answers
i was just wondering if it is possible for ms to affect muscles in polar ways? what i mean is, sometimes the muscles in the right hand side of my body are too weak to function. and other times they are totally seized up, and i cannot straighten my leg or uncurl my fingers.
many thanks
bb x
Hi everyone. Not even sure whether I should be posting on your forum but I am slowly getting at my wits end and I suppose like lots of people I am just looking for answers. Long story short(ish) for 5months now I have been 'numb' (I can feel a pinch or jab but feel like something draped over my skin permanently) from my little pinkie toe on my left foot up my left side and arm and down the left side of my back. This 'numbness' gets more intense in direct sunlight (not that we see a lot of that) and after a bath.
With the onset of this, on the same day, came what I described in the beginning as strange vacant episodes where I would be totally unable to interact with my surroundings but for the most of the time I was aware of what was happening. These would be daily, sometimes several times a day. This has since been diagnosed as Epilepsy for which I have been prescribed medication (and lost my driving license).
All this was checked out at A&E but was sent home having been told I had probably had a viral infection at some time and all would be well in a few days or so.
I had a brain MRI quite quickly on referral which came back clear. I have since had a MRI of the cervical and thoracic spine (neck and top of spine I think). The result of that came today: No significant abnormality. Whatever that means.
The only other things that have happened lately are an intense acute pain in my left eye, but no vision problems. This normally happens every 2-3 weeks and lasts for a few days at a time and I have had this several times in recent years. Then about 2months ago I went for an eye test at the opticians and when looking at a sheet of graph paper a proportion of it was all wavy with my right eye.
I have no history of epilepsy or any major illnesses in my family but what i find really strange is the neuro told me categorically that the seizures and numbness are totally unrelated even though they came on the same day!
Obviously I am not looking for any miracle diagnoses but I think I am just looking for some simple advice and perhaps hopefully someone who may have perhaps experienced just the smallest thing similar to the strangest 5months of my life.
Many Thanks for listening!
Best Regards
Mark
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