Well, yes, it's winter and I live in the North where it's colder than most of the rest of the country. Walking the dog I have to cover up, usually bar my hands and face. Out shopping, ditto. Feather filled long coat with hood and deep pockets is my new winter coat and I love it.
Gp has given me a supply with a message to fend for myself after - I have D3 in now. The capsules she's given me are 20,0000 unit each 2 to be taken once a week - I must be really low.
I don't drink a lot of milk, only at weekends do I have a jug with a large pot of decaf coffee both days in the morning. I eat cheese but not every week. I eat almonds, and leafy veg, but my nails are rubbish and always have been. This might have been going on for some time.
Last blood test I had was 15 years ago and in summer. Vit D probably sky high from me being in the garden all the time.
Should I ask for a review after, say six months to see if the Vit D is sticking? I know it does not for some.
Hi,
My fiancée is 25 years old and has always been fit and healthy. In August 2017 he suffered from bladder retention, which resulted in a trip to the hospital to get a catheter fitted. Over the next few days his legs became increasingly weak to the point of having a bad fall on the way to his GP and having to return to hospital where he has remained since.
His first MRI scan showed lesions in the CNS leading to an MS diagnosis and a course of steroids. Despite the high dose of steroids, he continued to get worse and each MRI he received showed multiple new lesions. Within 2 weeks of his admission to hospital he had lost all movement in his legs and arms, lost all bowel and bladder function, began to lose his eyesight and was transferred to the High Dependency Unit and put on oxygen as his breathing had deteriorated.
After multiple failed treatment attempts he began to receive Cyclophosphamide and 5 months on we are seeing very slow improvements. We have had mixed opinions regarding diagnosis, some say it is a very rare, aggressive variant of MS and others say their gut feeling says it is something else. Either way everyone who has seen him has agreed they have never seen a case like it.
Research on the subject is limited, so if there is anyone who has had a similar experience with aggressive MS, or anyone with any knowledge or advice, we would appreciate anything you can tell us.
Beth
Also from my local MS Society Group Newsletter
Vitamin D link to MS
The link between vitamin D and MS has been an area of interest for years. Now new research published in August has brought us a step closer to understanding the connection. Researchers in Canada suggest that people who have low vitamin D levels because of particular genes are also more likely to develop MS.
The team used information from two large genetic studies involving over 70,000 people. They found four variations within their genes that are closely linked to vitamin D levels, and then looked to see if these four variations were more common in people with MS. The results showed that people with these variations (who are prone to having low vitamin D levels) were at a higher risk of developing MS.
This highlights a new genetic link between vitamin D and MS, bringing us closer to
understanding how important vitamin D is in MS. What we don’t yet know is the potential benefits of vitamin D supplementation on reducing the chance of developing MS or as a disease modifying treatment.
You can read more about this new research on the MS Society website.
https://www.mssociety.org.uk/ms-research/emerging-areas/vitamin-d
Scully
Hi everyone,
Ill try abd making this short, basically iv been experiencing multiple sclerosis symptoms for a while since igave birth. It started with off balance, neuralgia and pain behind my eyes. It then went on to muscle stiffness, twitching of the eyes and many more. I had an appointment yesterday with a private neutologist who didnt say very much abouy my symptoms, but when he did a neurological examination he said my right eye, where the pain is on movement, was slow in reacting to the light test. My pupil stayed small on right eye and took a while to retur to normal. He recommeneded a a MRI in my kneck, head and spine with contrast and left itst that. My vitamin D levels are also way below nor al guide lines, so on 60,000 prD tablets a week, but my questikn is, is the pupil examination a sign of ms in itself?
A couple of months ago, I had a cold for about one week. I threw the cold off really quickly, which impressed me, but a couple of weeks later I suddenly became very dizzy and my cognitive abilities were severely hampered with my head becoming very
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