My RRMS is ‘clinically stable’ apparently – why do I feel so bloody crap then…!?
No new symptoms, just the old ones making me feel rubbish. But seemingly that’s ok because there’s nothing they can do about them now as the damage is already done.
Wasn’t told how important it was to go on DMD’s when I first had symptoms, Neurologist now says I’m not eligible until I have 2 new relapses within 2 years – but what about damage being done behind the scenes so to speak?
Today I have been experiencing the feeling of local anaesthetic, the feeling you have when it is wearing off after the dentist.
It first appeared inside my nose on the right and is now also on the left hand side of my face!
I wonder if these will stay or not?
HCT
I just need a virtual hug, again. not MS but it does affect it
AS I have mentioned before we me and my husband are responsible for 3 elderly people. one has now gone in a home, but as you know you dont just forget about them there are still lots of things to control.
Father in law who has had lots of mini strokes has been unwell this week he is also blind partially deaf and has emphysema and asthma and has had a chest infection this week, well we have been trying for over 2 months to have him assessed by social services.
Well because a doctor had to be called out at the beginning of the week they got crisis care in. and a daily nurse .
Well the nurse this morning, phoned me because hubby was at work , I felt she was having a go. she says
He has had nothing to eat or drink , he has not took his inhaler or meds , he is sat here incapable.
Well my husband went round last night and said you wont get a carer in the morning can you manage your meds and your porridge and I will see you at lunchtime when I finish work, yes he said, hubby got the jug out that he uses for his porridge and all was well.
They rang me yesterday and told me his clothes and underclothes have not been changed for a while, so yesterdays carer got out clean clothes for him. He didnt put them on though. A week back I arranged daily dinners for him (private meals on wheels) He told me to cancel them. They wanted him to go to day care at a place for blind people ... he refused, he wont have a key lock safe even though he doesnt hear the phone or door sometimes. He has now accepted that carers can come in. The other day though she phoned me and said he wont let her do anything for him and so she took the guide dog for a walk. That is another job we have to do.
We have been getting him wiltshire farm foods for a long time and he was managing to microwave them.
The other day the nurse who rang me said he does seem capable of doing these things,, this one this morning said he is not able to use his inhaler unsupervised, I told her I know nothing about inhalers anyway.
My husband has changed in the last few months and is even less tolerant about any little MS moans I have. My mother is 91and I get her online shopping read her post take her out and do her laundry. My hubby is working full time and also has CKD even though its manageable all this does him no good either. Moan over I feel better now I have ranted... thankyou, I know ou cannot do anything. I just felt a bit upset that the nurse seemed to think we had neglected him this morning, I took it personally I often feel like running away.
just getting over a bladder infection,and some ms symptons have got woorse,,and the double vision has made doing certain tasks more difficult.iam usually up beat,fighting the ms head on,but today ,the tears are flowing,ive lost the fight at the mo.my appointment with the ms nurse has been brought forward to monday,to see if the woorsening of ms symptons are because of bladder infection or woorsening of them generally.i have secondary pregressive ,with relapses. sorry guys to have a moan ,tc xx
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