Leg pain -again!

[Katie]

Hi all,

 

I have just driven up from Hampshire to Cheshire this week. Only made one stop on way and after a few hours my legs were hurting badly.

Once I got to my sisters in Cheshire I got walking about and it eases but that night in bed the pain was unbearable! It was right from my feet to my thighs this time and I had stabbing pains in my hands and arms too.

 

Does any of this sound familiar to any of you?

 

I have just started Gabapentin but only been on full dose for about 4 days so I guess a bit early to take effect.

 

I keep wondering if this isn't neuropathic pain - what on earth is it because this pain never leaves me anymore, just varies in strength.

 

Went shopping yesterday and was in my feet for a few hours and had to sit down - I'm 37 for goodness sake!

 

Thanks,

 

Katie

[Scully]

Hello Katie,

 

I can sympathise with the leg and arm pain, it plagues me a lot, and as I write this I am conscious that I woke up at 0530 with leg pain this morning. The pain feels like its deep in the bones, and nags constantly.

 

You aren't diagnosed yet ? So it's difficult to say if all this pain you are suffering is due to MS. Some people with MS have constant pain, as I and others do, some people don't suffer much in the way of pain. It's all very mystifying, even with a diagnosis!

 

I find that if I've been driving, or sitting/lying down for a while, when I then try to stand and move, I'm like a 90 year old. I sort of seize up and become 'chair-shaped ' for a while.

 

The pain at night isn't nice at all. When I was on Gabapentin, I used to double it up before I went to bed in an effort to get some sleep.

 

You are correct in that it's a wee bit early for the Gabapentin to take its full effect, but hopefully it will kick in soon for you.

 

Scully

x

[Skippysprite]

Scilly that's interesting that you say 'bone pain' as mine was so bad the last couple of nights, that I didn't know if it was the bone causing the pain or not, but also it was really painful just when the duvet touched it.

 

I get pain during the day also, but I find things to try and distract me, bbutt during the long dark nighht , not so easy, as I try hard not to disturb my hubby.

 

Takes some understanding this ms malarkey, although I have had it years I don't think I will ever truly undersand .

 

Take care, have a good weekend everyone.

 

Pam

[Hezza]

Katie,

I can identify with what's going on with you and it certainly isn't nice. Like Scully, I get a deep ache that feels like it is in my bones. In my case it is definitely Neuropathic and I take a low dose of Amitryptline that keeps it mostly at bay.

 

I do find that the pain is much worse when my period is due for several days and also when the weather is changing. Unfortunately I've been hit by both of those factors this week - sod's law

 

Hopefully the gabapentin will kick in soon. If it isn't working then ask about an alternative. It's difficult when you don't have a definite diagnosis but there other options that can be tried. Not everything works for everyone unfortunately.

 

Take care