Hi everyone
Just to clarify. I saw a neurologist back in the early 90s as my GP suspected I had a problem with my central nervous system but the Neurologist, without pursuing any investigations, told me all of my symptoms were down to anxiety.
Since then I have never managed to convince any GP to refer me to anyone else about my continuing symptoms so I am self-diagnosed.
I have finally managed to get referred to a memory clinic and am also waiting for the results of a head scan that happened in June. The referrals were not connected to any mention of M.S. as I asked due to deterioration in my cognitive functioning which wasn't great anyway.
A privately funded clinical psychologist picked up on all of these issues + ADD and Dyslexia but NHS doctors dismissed the report and continued to put things down to anxiety, which thankfully I don't suffer with.
I'm somewhat in limboland, with an FND diagnosis but increasing symptoms, so have been referred back to neurology again.
My latest symptom is affecting my eyes. I usually have excellent vision, no need for specs exept sunglasses as bright light exacerbates a facial spasm around my right eye.
Almost two weeks ago, I woke up with pain behind my R eye all day. I took paracetamol and carried on. Three days later I became unsteady on my feet (no alcohol involved!)
The following day I woke up with a L sided headache, slightly off my food, light sensitive and noticed my colour vision was greyer on the left.My L sided numbish feeling had increased and noticeably spread down the side of my tongue. I felt scalded after eating and drinking (not hot, just warm things).
Four days later I had pain behind my other eye ® and the greyish tint had followed it. It has since been swapping between my two eyes, the greyer, duller, slightly blurrier vision being on the same side as the pain, whether left or right, but it seems to be mostly in my right.
I saw my GP who suggested migraine but made sure I'm seeing a neurologist (and told me to chase up the appointment) and also urged me to see an optician, booked for next week.
So...now I'm left wondering what on earth is going on with my eyes! Could it be optic neuritis? I do have a family history of migraine and had them myself (rarely) since about 6 years ago, but this feels different and new.
Hi guys,
I don't hold a full driving licence, just a provisional. After my diagnosis way back in feb I dug it out and sent it off to declare my dx, also to change my address and surname (better late than never!) as I suddenly realised how much i need to be able to drive as it will give me so much more independence.
I filled it all out and got a letter back to say they needed my dr's details etc, sent off in march. Got a letter today (yes today 10m on!) saying they still had not made contact with my neuro, could I chase him up and get back to them? I have changed neuro's in this time and according to my nurse, current neuro is off until January (nice life for sum huh?!). So what do I do now? Just wait or try the old neuro again? Would he still count as my doctor? Why do we always end up having to organise things?!
All advice welcome, thanks
Lx
hi everyone.
not been saying much lately but i do check in a few times a day. just been a bit down and stressed out with my kids a lot but i should be used to that eh?
i have an eyesight question.I have not to my knowledge, experienced optic neuritis before but for the last few days i have struggled with my left eye and then last night it was as though it had mesh over it.
i put it down to tiredness but this morning it was just as bad. I can read with my other eye but if i cover the good eye up i can hardly make out the letters, its weird, half the letters vanish or fade to nothing.
i have phoned my nurse but im scared by this and its had me in tears a few times.
what are your experiences?thanks everyone.
Hello everyone
I am doing a university course at the moment in psychology which is all very interesting and i'm enjoying it a lot. I have declared my disability to the university and they have been really helpful in making sure i'm catered for, giving extensions etc.
However I am finding it really hard to remember what I read, I seem to have a very short concentration span and my memory is well, useless (putting it mildly). I also struggle with spelling, I'm forever getting letters the wrong way round and just can't recall the right words at all sometimes.....thank goodness for spell checkers and the internet!
I really do feel my cognitive abilities are fading fast and I would really like to find a way to adapt. So I wondered if anyone else suffered with the same and if so how they manage?
All thoughts welcomed :-)
Laura
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