Jump to content
The MS PEOPLE UK Forum
Support, help, advice and information for Multiple Sclerosis. Ask questions and share experiences with people affected by MS.
Velvet

Eyesight issues

7 posts in this topic Last Reply

Recommended Posts

Velvet

A little over three weeks ago I started having pain in my left eye when moving it (looking to the sides or up/down) and after around a week my vision started to get worse in that eye.

The pain lasted for two weeks and has now gone, but the vision is still bad. Everything is duller, colours less vibrant, it sort of looks like the world has gone misty and I can't see properly. Just sitting here at my computer, if I close my good eye I can't read what I'm typing without sticking my face very close to the screen.

 

I had optic neuritis a couple of years ago and was worried it could be that again so told my nurse who bumped up my appointment with the eye department and I went in yesterday. They did the basic eye test reading the chart, which I couldn't read as well as usual but it wasn't too bad (I always find the chart is misleading about my eyes because it's lit up and so high contrast I see it a lot better then I do things in the normal world). I also had the field of vision test and a scan of my eyes.

 

At the end she told me my vision was better then 100% and she didn't need to see me again until May next year. I told her I can't see properly from that eye but she just kept telling me there's nothing wrong with the eye and not to worry.

 

When I asked about why it's bad she said maybe a headache, a memory of my past optic neuritis or maybe early optic neuritis that isn't showing signs yet.

I assume by headache she meant migraine, but from what I've read it doesn't sound like that's the case. I don't know what she meant by memory. And if it could be optic neuritis in the early stages wouldn't they want to see me again to confirm it?

 

I'll be seeing my neuro soon for other test results so I guess I'll wait and ask him about it as he's always been very helpful.

 

Have any of you had similar eye issues and what did it turn out to be?

Share this post


Link to post
Sleepy
Scully

I guess by 'memory' she's thinking that because you've experienced it before, it may play on your mind that it's back again ?

 

It's wise to get your eyes checked out though. And she sounds as though she's done a thorough test for you.

 

A few weeks ago I was experiencing something similar, my right eye was really bad ( which is my good eye!) but, after a few weeks the blurry vision vanished, so it can come and go and not really be anything much at all.

 

 

Migraine in fact can cause the vision disturbances but without the headache. I think migraine is a complex condition. Migraine with or without 'aura' and aura without headache so she may well be right i guess.

 

Do mention it to the Neuro when you seem them for your results though.

 

Scully

 

 


They are not brain lesions..........they are just bright ideas

 

"The truth is out there"

Share this post


Link to post
Velvet

Thanks Scully, I suppose that might be what she meant by memory. The way my vision looks now does seem the same as when my past optic neuritis was on the mend. It was quite different before though in that I had no pain and just woke up one morning completely blind in that eye. But having it in the past does make it stick in my head, before then I'd never even heard of optic neuritis. :P

It just confused me a bit how she gave memory as a possible reason for why my eye is bad now.

 

I'm glad your vision got better again, hopefully mine will soon. It is good knowing there's nothing really wrong with my eye, but at the same time worrying because I don't know why my vision is bad, if that makes sense.

Share this post


Link to post
Velvet

Well, my vision is still clouded and as of yesterday I have double vision as well which is making life pretty awkward.

 

I saw the doctor earlier today who's made me another appointment at the eye clinic for the 27th. He said there's nothing they can do to treat it until they know what's causing it so I have to wait and see what the eye clinic says. I was just wondering if any of you had tips on dealing with double vision and if there's anything I can do while I wait?

It's making life pretty hard as I don't know where anything is, my depth perception if off and walking is hard as it's so disorientating.

When I close one eye it does go away so would some sort of eye patch be an option?

Share this post


Link to post
Procrastinating
Stumbler

Prisms can be used to temporarily correct double vision, where your eyes don't/can't converge.

 

Double vision was a symptom side-effect that I had to deal with. I saw an Optometrist? , who measured the extent of the problem. They then cut out some stick on prisms, which they fitted (well, just stuck them) on one lens of my glasses.

 

Every 4 or 8 weeks, I returned and we weakened the strength of the prisms, slowly retraining the eye, until the convergence of my vision was corrected.

 

:moonieman:.


John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

Share this post


Link to post
Velvet

Thanks Stumbler.

I went in yesterday and they did a bunch of tests. He said the angle of my double vision was very wide so prisms might not work.

 

He tried the strongest prism they had and it does help. Distant things are still double but closer things are okay, albeit a bit odd looking. In bright light the prism seem to give objects a rainbow edge to them, kind of pretty really.

But it makes it a bit easier for me to get around as I can actually see where my feet are going now. :)

I'll be going back in around a month to see if it's got any better and if it has he'll try a slightly weaker prism.

 

Going back to my neuro on the 7th to get the results of all my other tests and hopefully some answers to what's causing my issues.

Share this post


Link to post
Procrastinating
Stumbler

I'm pleased you've been able to get some relief.

 

:moonieman:


John aka Stumbler (as I do fall over!)

Illegitimi non carborundum

 

"Life is not a journey to the grave with the intention of arriving safely in a pretty and well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming... "Wow! What a ride!"

Share this post


Link to post

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Similar Topics

    • Cognitive and Memory Issues Have Got Worse

      Hi everyone Just to clarify. I saw a neurologist back in the early 90s as my GP suspected I had a problem with my central nervous system but the Neurologist, without pursuing any investigations, told me all of my symptoms were down to anxiety.   Since then I have never managed to convince any GP to refer me to anyone else about my continuing symptoms so I am self-diagnosed. I have finally managed to get referred to a memory clinic and am also waiting for the results of a head scan that happened in June. The referrals were not connected to any mention of M.S. as I asked due to deterioration in my cognitive functioning which wasn't great anyway.   A privately funded clinical psychologist picked up on all of these issues + ADD and Dyslexia but NHS doctors dismissed the report and continued to put things down to anxiety, which thankfully I don't suffer with.

      in General Discussion about MS

    • Eyesight changes

      I'm somewhat in limboland, with an FND diagnosis but increasing symptoms, so have been referred back to neurology again.   My latest symptom is affecting my eyes. I usually have excellent vision, no need for specs exept sunglasses as bright light exacerbates a facial spasm around my right eye.   Almost two weeks ago, I woke up with pain behind my R eye all day. I took paracetamol and carried on. Three days later I became unsteady on my feet (no alcohol involved!) The following day I woke up with a L sided headache, slightly off my food, light sensitive and noticed my colour vision was greyer on the left.My L sided numbish feeling had increased and noticeably spread down the side of my tongue. I felt scalded after eating and drinking (not hot, just warm things).   Four days later I had pain behind my other eye ® and the greyish tint had followed it. It has since been swapping between my two eyes, the greyer, duller, slightly blurrier vision being on the same side as the pain, whether left or right, but it seems to be mostly in my right.   I saw my GP who suggested migraine but made sure I'm seeing a neurologist (and told me to chase up the appointment) and also urged me to see an optician, booked for next week.   So...now I'm left wondering what on earth is going on with my eyes! Could it be optic neuritis? I do have a family history of migraine and had them myself (rarely) since about 6 years ago, but this feels different and new.

      in General Discussion about MS

    • DVLA issues

      Hi guys,   I don't hold a full driving licence, just a provisional. After my diagnosis way back in feb I dug it out and sent it off to declare my dx, also to change my address and surname (better late than never!) as I suddenly realised how much i need to be able to drive as it will give me so much more independence. I filled it all out and got a letter back to say they needed my dr's details etc, sent off in march. Got a letter today (yes today 10m on!) saying they still had not made contact with my neuro, could I chase him up and get back to them? I have changed neuro's in this time and according to my nurse, current neuro is off until January (nice life for sum huh?!). So what do I do now? Just wait or try the old neuro again? Would he still count as my doctor? Why do we always end up having to organise things?!   All advice welcome, thanks Lx

      in General Discussion about MS

    • eyesight

      hi everyone. not been saying much lately but i do check in a few times a day. just been a bit down and stressed out with my kids a lot but i should be used to that eh?   i have an eyesight question.I have not to my knowledge, experienced optic neuritis before but for the last few days i have struggled with my left eye and then last night it was as though it had mesh over it. i put it down to tiredness but this morning it was just as bad. I can read with my other eye but if i cover the good eye up i can hardly make out the letters, its weird, half the letters vanish or fade to nothing.   i have phoned my nurse but im scared by this and its had me in tears a few times. what are your experiences?thanks everyone.

      in General Discussion about MS

    • Memory issues

      Hello everyone   I am doing a university course at the moment in psychology which is all very interesting and i'm enjoying it a lot. I have declared my disability to the university and they have been really helpful in making sure i'm catered for, giving extensions etc.   However I am finding it really hard to remember what I read, I seem to have a very short concentration span and my memory is well, useless (putting it mildly). I also struggle with spelling, I'm forever getting letters the wrong way round and just can't recall the right words at all sometimes.....thank goodness for spell checkers and the internet!   I really do feel my cognitive abilities are fading fast and I would really like to find a way to adapt. So I wondered if anyone else suffered with the same and if so how they manage?   All thoughts welcomed :-)   Laura

      in General Discussion about MS

About Us

Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.

If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.

The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.


The MS People Forum is not responsible for advice or information supplied by members. We suggest you seek medical advice before trying anything.
×