Hi, I am very new to this forum, but feel it is time to reach out to other people who have MS, in the hope of gaining insight an inspiration. I am aware that it seems to be getting harder to remember things - mainly names and numbers. Is this an MS thing? Or is it just getting a bit older? Has anyone else had problems like this?
Hi All,
I have had SPMS for some 15 years, with the main problem being mobility, with occasional (usually) night-time spasms (big toes bending upwards, nearly always right foot) whilst this used to be more annoying than anything else, it has got worse over the last few weeks and can last for over 3 hours at a time. It is now having a devastating impact on my routine, and I would love to hear any tips or advice from members on coping techniques.
I currently take up to 8 Baclofen daily, which I do think are effective any more, and am currently on a trial for Sativex- but this does not seem to touch an aggressive episode like last night, even a Diazepam on top didn't help
I have tried Gabapentin but had a bad reaction, and although usually effective, I don't want to become reliant on Diazepam.
Any help massively appreciated.
Regards
Mark
Hi, I am new to this forum so I do apologise if I have not done this correctly.
I was diagnosed with RRMS last August after first getting Optic Neuritis and then bad legs.
I am a website designer so thankfully I am able to work from home most days and venturing in the office when I am feeling well.
I would say my fatigue is the worst thing, I am sure many of you will agree. I take Amantadine, eat healthy and get lots of sleep but still feel bad. I recently got married in Vegas and it was the first time I felt a lot better, the dry heat I think really helped me.
The recent hot/humid weather in the UK has done the opposite, it has made me spend days in bed and being unable to work.
My wife and I have been thinking whether it maybe a good idea to go abroad for 4/6 months to see how I am. I can still get a works visa for NZ and I am seriously thinking of going to work there and also travel to see how I am.
Has anyone been to Oz/Nz and found that the symptoms have not been as bad?
I know heat is a bad thing, but for some reason I felt great the other month in Vegas, It maybe a holiday/wedding high but clinging on to the thought that dry heat may actually help me.
Any advice/help would be appreciated.
Chris
A little over three weeks ago I started having pain in my left eye when moving it (looking to the sides or up/down) and after around a week my vision started to get worse in that eye.
The pain lasted for two weeks and has now gone, but the vision is still bad. Everything is duller, colours less vibrant, it sort of looks like the world has gone misty and I can't see properly. Just sitting here at my computer, if I close my good eye I can't read what I'm typing without sticking my face very close to the screen.
I had optic neuritis a couple of years ago and was worried it could be that again so told my nurse who bumped up my appointment with the eye department and I went in yesterday. They did the basic eye test reading the chart, which I couldn't read as well as usual but it wasn't too bad (I always find the chart is misleading about my eyes because it's lit up and so high contrast I see it a lot better then I do things in the normal world). I also had the field of vision test and a scan of my eyes.
At the end she told me my vision was better then 100% and she didn't need to see me again until May next year. I told her I can't see properly from that eye but she just kept telling me there's nothing wrong with the eye and not to worry.
When I asked about why it's bad she said maybe a headache, a memory of my past optic neuritis or maybe early optic neuritis that isn't showing signs yet.
I assume by headache she meant migraine, but from what I've read it doesn't sound like that's the case. I don't know what she meant by memory. And if it could be optic neuritis in the early stages wouldn't they want to see me again to confirm it?
I'll be seeing my neuro soon for other test results so I guess I'll wait and ask him about it as he's always been very helpful.
Have any of you had similar eye issues and what did it turn out to be?
i have neuropathic pain in my legs,also have poor cognitive skills and pretty poor memory,so why cant i forget the pain !! lol take care everyone and have a good day xx
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