Spasms getting worse

[Nichols2828]

Hi All,

I have had SPMS for some 15 years, with the main problem being mobility, with occasional (usually) night-time spasms (big toes bending upwards, nearly always right foot) whilst this used to be more annoying than anything else, it has got worse over the last few weeks and can last for over 3 hours at a time. It is now having a devastating impact on my routine, and I would love to hear any tips or advice from members on coping techniques.

 

I currently take up to 8 Baclofen daily, which I do think are effective any more, and am currently on a trial for Sativex- but this does not seem to touch an aggressive episode like last night, even a Diazepam on top didn't help

 

I have tried Gabapentin but had a bad reaction, and although usually effective, I don't want to become reliant on Diazepam.

 

Any help massively appreciated.

Regards

Mark

[ptlike]

Hi mark

 

I personally have an interfecol baclofen pump fitted so don't take oral medication for spasms but I do get spasms in my legs. I find placing a pillow under knees on a night helps. I'm sorry I can't really offer advice regarding toes but I wonder if separating them may help. Is it spasms or cramp your suffering?

 

All the best

peter

[Nichols2828]

Thank you so much for replying Peter.

It is spasms.

I will try the pillow suggestion, and crossed fingers it will improve-a bad spell usually is followed by a good one!

Thanks again and best regards

Mark

[Scully]

Hello Mark,

 

Welcome to the forums and boards.

 

Spasms are so uncomfortable and painful. I suffer with them as well.

 

I take Baclofen along with Pregabalin. I switch to Pregabalin after gabapentin wasn't helping with the pain any longer. That combination does seem to help.

 

Getting comfortable during the night can be a very hit and miss affair. Sometimes I'm up for hours, sometimes I sleep right through.

 

My neuro- physiotherapist suggested lots of gentle stretching exercises. I think she's right, as if I perform gentle stretching during the day, but particularly before I go to bed, it certainly seems to help.

 

We are all different of course, and sometimes it's simply a matter of trying these things out until we find what suits us best.

 

Scully

 

[Skippysprite]

Hi Mark

 

Welcome to the forum, it usually iis busier than this.

 

I also have painful spasms, take baclofen the same as you, but have also heard of others taking magnesium. Not tried it myself, so can't comment, but would it be worth asking your MS nurse (if you have one) or GP?

 

Hope you feel better soon, take care.

 

Pam x

[Nichols2828]

Thanks Pam.

I used to use Magnesium spay, and think it might of helped, so thanks for the reminder! It would be good to know if other members have used the spray, or tablets.

I am feeling better at present thank you.

Best wishes

Mark

[jayjill]

Hello Mark,

Yes I take magnesium, partly as I also take calcium. But since having magnesium as a separate capsule (ie more of it) over the last few months I think it has stopped spasms getting worse. You could also try a yantra mat (amazon sell them). Hope it continues to be less bothersome.

Jill