Old newbie.

[Buff Stallion]

Hello people. 
Very long story short; I was diagnosed with RRMS in 2002. It took 4yrs to get diagnosed and the symptoms at the time were fairly debilitating.... but I was a lucky one, the symptoms passed leaving just fatigue and twitching with some spasticity, all fluctuating in seriousness. Nonetheless life carried on. 
Over the past 6 months I’ve started to deteriorate, constant pain, constant weakness, constant pins and needles. Also have issues with vision occasionally but nothing tooo serious. Twitching is quite relentless at times. 
Had a recent mri scan and having another in approx a month. 
I have the most wonderful other half and family all ready at the drop of a hat to help. 
 

Basically I’m just catching up and having a read to help me feel a little less alone and “chat” with people that know what it’s like to live with multiple sclerosis. 
 

thanks

Neil 

[Stumbler]

Hi @Buff Stallion .

 

It's been a bit quiet on the Forum recently. I'm wondering if there has been a cure that no-one has mentioned to me!  

 

Significant others and family can be a great support. I too would be lost without them.

 

Are/were you on any MS drugs?

 

[Buff Stallion]

Hi, back when I was first diagnosed I had theeeeee worst specialist dr xxxxxx Eastbourne (whom obviously didn’t like me). My final session I had with him in 2004 I listed the issues I was having (huge fatigue, numbness, absolute lack of strength, twitching and the feeling of walking on glass along with foggy vision. His response was “so, no MS symptoms then”. We parted company when he factually explained “I’ve got patients that have got MS worse than you”. I decided to step away from the nhs and grin and bear life but this last summer (other than maybe 4-5 hospital visits for various unexplained ailments) it’s gotten worse and worse and thankfully my GP (whom referred to previous specialist as “a bit of a knob) is fantastic and I’m now back in the system awaiting preliminary medication (for pain and twitching) whilst I get assessed further. 
I still feel I am a lucky one as I can still walk about albeit extremely slowly and other than legs giving way and occasional tremors you’d never know......

Edited 12 Feb 2020, 7:18 pm by Stumbler
Potential defamation!

[Stumbler]

@Buff Stallion , unfortunately, there are Neuros and Neuros. Some are trapped in a time warp and need putting out to grass, but they're all in demand and don't have ready replacements!

 

And, a very philosophical attitude. Yes, don't cry for what you've lost. Just celebrate what you've still got.

 

 

PS I removed the actual name in you post to avoid any defamation litigation.

Edited 12 Feb 2020, 7:16 pm by Stumbler

[Buff Stallion]

Thanks, he’s retired now thankfully which is the reason I agreed to attend the same hospital again. 

[Stumbler]

@Buff Stallion , you should always refer to your MS Nurse in the first instance. They are specialists, just dealing with MS patients. Neuros get involved in the whole range of neurological problems, so may not be that good with MS.

 

[Buff Stallion]

Hi. I’m due to be assigned a nurse, but 20yrs ago the subject of a nurse wasn’t even discussed. 

[Stumbler]

@Buff Stallion , you can locate your MS Nurse here :-

 

 

MS services near me | MS Trust

WWW.MSTRUST.ORG.UK

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Use our map to search for an MS service that is near to you

 

 

[Buff Stallion]

cheers 

thanks for that.