Thought people might be interested in this link, received by me from the MS Register.
Personal Independence Payment (PIP) is the new disability benefit that is replacing Disability Living Allowance (DLA) and they want to know more about how it’s affecting people with MS. They are particularly looking at the new 20 metre criteria for mobility support which means fewer people are receiving the highest rate.
Take the survey http://go.newvistalive.com/start/?jn=P18373&dS=1
They want to hear experiences from anyone currently navigating the PIP process or who is still on DLA, no matter what stage you are at. It should take around 20 minutes to complete and your responses will help the MS Society campaign for change across the whole of the UK.
The survey is being run by ICM Unlimited on behalf of the MS Society. So, if you have any questions about the survey please email the ICM Unlimited Research Team at firstname.lastname@example.org.
Your feedback will be completely confidential, and individual responses will not be attributable or made available to the MS Society, unless you give your specific consent.
You might receive an invite to this survey again, if you’re a member of the UK MS Society Campaigns Community or Shift MS but you only need to complete it once. Your views and experiences will help the MS Society call for a welfare system that makes sense for people with MS.
If you feel you need advice or support relating to issues raised in this survey you can contact the MS Society helpline on: 0808 800 8000 or via email: email@example.com.
Like a few other people here I have been signed up with the MS register for some time. They have just brought out a new survey which I have just completed this morning. A bit difficult to get through, that one, but I did my best to understand it!! For those that have perhaps not heard about the regular long term survey, it's well worth having a look and signing up, every little helps.
Nice and sunny for once here in Great Yarmouth, off to my seated exercises shortly, where I shall ware myself out and generally have a good chat to a few very different folk from all walks of life...........and ability.
Before my petition can be go live on https://petition.parliament.uk I need 4 more people to support my petition.
please click on this link to support my petition
Sativex to be Widely Available for MS Suffers
This petition is to ask the goverment to make Sativex widely available to people who have Multiple Sclerosis (MS) to ease the symptoms of MS spasticity, spasticity can have a significant impact on daily activities.
http://www.bbc.co.uk/news/uk-wales-28810407 The NHS in Wales is first in the UK to fund a cannabis-based medicine for people with multiple sclerosis.
a long story short,i finally got my dog back from my ex husband after a couple of years,dexter was in bad shape,lumps,and bad back legs.took him to vet on the Wednesday,vet said it would be better if dexter was put down,he died with me cuddling him.had a relapse a few months back put on steroids speech went back to normal.speaking to my son on the phone last night he said my speech was getting bad again,i.e,slow and slurred.is it possible losing my dog has done this ? can shock and upset make symptons worse if so,this quickly ? any advice would be great. tc guys,xx
Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.
If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments.
The atmosphere is friendly whilst being compassionate, supportive and caring. Members also post about a variety of subjects not related to MS, as well as share jokes, talk about their hobbies, have fun, and more.
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