Would you change your Neurologist?

[Sandra Dee]

I just want to sound out on this one

 

I was diagnosed by a Dr that visits the hospital I was admitted to via A&E. He is mainly based at Walton I think and I imagine he maybe spreads his wings, I got this idea when i asked if I needed to contact him before my appt in 6 weeks.. his reply good luck. My question is, would you ask to see someone else that MS is more of an interest to. I apprecaite that MS and Parkinsons are both Neruological.

 

Whilst I saw this Dr 24 hrs after being admitted (luckily more than anything, as it was his day at the hospital) he knew straight away as he mentioned steriods may be required (I only realised this on reflection later whilst been given steriods that he probably knew or thought it was probable). Part of me feels rather blessed that I saw him when I did of course, someone else may not of picked this up.

 

It was when I had 2 MRI's some 3 days later that he viewed them remotely and then I was diagnosed... the news came via another Dr who was Cardio and I was started on the steriods immediatley. The downside was I was left for 4 days without seeing a Dr and getting worse every day until he came back the following week to speak to me. I just wonder then and now if I would be better in Walton and with someone who specialises with MS or MS being their particular interest. Part of me thinks that is where all the nurses are. I guess/hope I would not be on a Cardio ward, where I was things like Physio were not discussed until I was leaving when my mobility was at it's worse, part of me thinks if a qualified nurse had been looking after me I would not have been soooo worried and hunched up trying to protect myself... even worrying if I was able to sneeze. They even stopped me walking about incase I hurt myself due to lack of knowledge, but of course caring at the same time.

 

The scary bit for me was from being diagnoised and then being left with hardly any knowledge, I doubt that would happen in Walton, of course I have gone through the scary phase I guess and hopefully I will not be in that place mentally again.... but it just crosses my mind that I need to make some choices now before my first appointment since diagnosis and part of me thinks get myself to Walton under an MS Dr.

 

I want to make the right decision... who does not huh.

 

Part of me feels bad for asking as sooo many people here do not have a diagnoises but are trying to live without answers.. luckily for me I had no idea something was wrong...

 

Thanks for listening.

 

x

[Christina]

Hi there

I think if it were me I'd prefer to be under the care of an MS Specialist and I hear good things about The Walton.

Chris x

[Bigbird]

Sandra

 

I'm not sure when you saw the doc from Walton but if it was before Xmas last year both MS docs have gone to Oz. I'm not sure there were more than two but I may be wrong. A new one started in January so you may not need to change.

 

One of the ones from Walton wasn't liked by my physio. I saw the other one who was brill.

 

Good luck whatever you decide

 

If you let me know the docs name off the message board I'll let you know if he's left.

[Scully]

Hello Sandra,

 

I was initially seen in The London Hospital for Neurology by a consultant who didnt specialise in MS. He soldered all the tests etc, diagnosed me and then referred me over to one of his colleagues who did specialise in MS.

 

Since then, I had found the trip up and back to London almost impossible to to, so I was then referred to a Neurological Unit closer to home.

 

You would probably be much better off under A consultant who is a specialist in the field of MS.

 

Scully

[Sandra Dee]

Hi everyone..

 

Thanks...

 

I will pm you big bird.

 

:)