In January 2023 I had about 4 weeks of 'strange' symptoms - including numbness, pain, buzzing in my arms, spasticity in my legs and toes, dizziness, blurred and double vision, insomnia, memory issues and headaches. All of these symptoms were intermittent - would last a couple of hours and then go away, and sometimes come back in a few days and sometimes not.
This was followed by 18 months of fatigue - 60% what I'd define as really run down and tired feeling, but 20% genuinely so tired I couldn't do even the most basic things.
I had a neurology consult in August 2023 where they told me not to worry about anything because the symptoms - except for the fatigue which was only at run down levels then - had gone away.
I've now this June had another 3 week episode of what feels the same to me. The same types of symptoms - but intermittent again.. And the really bad tiredness is back with a vengeance.
Went back to the GP they they seem to think that I shouldn't worry because all of this is intermittent. Basically said that if it was something serious like cancer the issues would be there all the time and she said that these could all be psychological or brought on by stress. I think she's also placing a lot on the fact that the neurologist said there was nothing wrong with me - but the neurologist saw me for literally 10 minutes and the only diagnostic she did with me was to make me push on her thumbs.
I'm worried about MS - it feels to me like I've had two distinct episodes, within 18 months of each other, and characterise by vision, cognitive issues and fatigue, so I'm considering getting a private neurology consult. But also I know that I have struggled with mental health for my entire life, so if the fact that I experience only temporary eg numbness really does mean that this isn't likely to be MS I don't want to waste my time or money (or be made to feel crazy by another HCP which is never fun!)
I'd love to know if when people who know they have MS have an episode what the duration of their symptoms are - both how long the episode is and how long an individual symptom would last - it would help me make a call one way or the other.
Thank you!
E.
Hi, first time here. Have had relapse remitting MS for about 20yrs and after a tricky start despite the odd flare up have had very few major issues for around 15yrs. Last year or so I have had the feeling of lots of minor increases in symptoms/ mini flare ups but in the last few months I have seen a massive increase in pain, cognitive issues, fatigue etc that just seem relentless. Have undergone a variety of tests (unrelated to MS) all of which come back as without issue and GP’s current best guess is depression and or IBS. I don’t feel depressed but I am in constant pain which is sapping my energy now. MS nurse is trying to get a consultant to see me (last few yrs all appointments have been phone calls only). Anyone have any words of wisdom or comfort
Hi all. Hope everyone is doing as okay as can be! I've had these new symptoms for about .. 2-3 months now.. they're driving me insane.. My jaw/teeth clenching together. I'm not knowingly doing it. Just happens. Starting to really hurt my jaw and teeth from the strain and pressure of it. Also my eyes have been automatically squeezing closed. Sort of a similar feeling to when cutting onions (minus the tears and stinging) but that urge to squeeze the eyes shut. Does anyone else experience these? Thank you!
Hello.
I was diagnosed with RRMS in 2014.
Until the last 6 months, I have been coming down with fever so bad it puts me in bed for days and nights. I'm taking Aubagio 14mg daily. It's really starting to change my life. My gp is useless and does not listen. Neither does my ms nurse . Nothing gets investigated and I feel so let down.
Hello
I hope no one minds me joining and posting here. I don't have a diagnosis of MS but I have a long and tedious list of random symptoms. I feel I'm being fobbed off by my GP who seems to think I'm either a hypochondriac or depressed. I don't think I'm either. I know some of the following are normal for a 45 year old working mum, but I'm listing everything to give a full picture...
Stomach issues and weight loss
Twitching muscles / nerves and jerking fingers
Sore, burning patches of skin (shoulder / armpit and thighs)
Weird numb, weak feeling in left forearm
Stiff, weak hands
Clumsiness
Blurred vision at times
Lower back pain
Random pins and needles
Poor memory and concentration
Dizziness / feeling spaced out
Exhaustion
Anxiety
Zero libido
I've had various tests and the only things that have come up are B12 deficiency (not pernicious anaemia), positive ANA and a hiatus hernia. GP says that none of these are likely to be causing my symptoms. I experienced a sudden earlyish menopause a few years ago but HRT hasn't helped me feel better. GP is reluctant to treat B12 as tests for PA were negative, despite me eating a good diet and taking supplements at the time.
The burning skin, finger jerking and weird feeling in my arm are new symptoms over the past couple of months and are what has led me here.
I know nobody here can diagnose me of course. I just wonder whether my GP should be doing more. They don't seem remotely interested to be honest.
Thank You
H
Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition.
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