unsteady on feet

[frances22]

Hi

not too well today last night I could not sleep had shooting pains in my head, today my legs feel very weak cannot walk very well is this normal for ms getting a bit frightened.

Frances.

[Nick]

Hi Frances,

 

I have very similar symptoms and having problems walking can indeed be scary. Anything like this that is worrying you is best taken up with your MS Nurse , if you have one, or the GP. The more knowledge the neurologists have about you the better and I think we are all guilty of thinking that we don't want to bother anyone with it all. So best at least keep a note of it and make that call.

 

When I was first diagnosed I didn't understand the walking problem. I was in fact trying to 'overcome it' but in reality was in fact simply only 'overdoing' it.

The effect I get is that as I walk so I become more 'weak' at first a bit like having a bad ankle. This had me getting 'stuck' and being stranded leaning against walls, thinking 'Christ how am I going to get home!' This is scary. I have now learnt the importance of exercise as a 'measured dose' that is working within your abilities. Its important to keep going but its also important to stay within the abilities you have. In theory doing this will boost your confidence a bit.

We are all different and things like this with MS are also very variable so don't get to stressed out about it. yes it is scary but you need to find out what you can do while staying within that zone of not overdoing it. Don't forget that with MS you are 'working' that brain much harder than if you were without the condition. When I overdo it, which is all the time, I get a big increase in headaches and the dreaded 'deep pains' in my arms and legs.....Its all balance in everything.

 

Hope that helps a bit

 

Nick

Edited 7 Nov 2011, 3:29 pm by Nick

[frances22]

thanks so much Nick for your reply, I will try and pace myself more. Just having a rotton day

 

frances x

 

 

 

 

 

Hi Frances,

 

I have very similar symptoms and having problems walking can indeed be scary. Anything like this that is worrying you is best taken up with your MS Nurse , if you have one, or the GP. The more knowledge the neurologists have about you the better and I think we are all guilty of thinking that we don't want to bother anyone with it all. So best at least keep a note of it and make that call.

 

When I was first diagnosed I didn't understand the walking problem. I was in fact trying to 'overcome it' but in reality was in fact simply only 'overdoing' it.

The effect I get is that as I walk so I become more 'weak' at first a bit like having a bad ankle. This had me getting 'stuck' and being stranded leaning against walls, thinking 'Christ how am I going to get home!' This is scary. I have now learnt the importance of exercise as a 'measured dose' that is working within your abilities. Its important to keep going but its also important to stay within the abilities you have. In theory doing this will boost your confidence a bit.

We are all different and things like this with MS are also very variable so don't get to stressed out about it. yes it is scary but you need to find out what you can do while staying within that zone of not overdoing it. Don't forget that with MS you are 'working' that brain much harder than if you were without the condition. When I overdo it, which is all the time, I get a big increase in headaches and the dreaded 'deep pains' in my arms and legs.....Its all balance in everything.

 

Hope that helps a bit

 

Nick

[Hezza]

Hi Frances,

The lack of sleep may be making things worse for you. If I've not slept well, or am feeling run down, then my symptoms can be much worse.

 

Take it as easy as you can and hopefully things will improve. If you're worried and it's not improving then call your GP or MS Nurse if you have one.