I have seen my doctor this morning about my depression medication. He told me he has a letter from my recent neurologist, dated 8 October this year, which I have also been sent. This letter says I have MS, almost certainly Primary Progressive, but MRI with contrast, which I have now had, will confirm.
The doctor said he also had a letter, which I haven't seen, dated 9 October this year, from my first Neurologist, that says Spinal Fluid results show I don't have MS. The only time I have had Lumbar Puncture was five years ago. I have tried to contact my MS nurse, but can't get her yet.
This raises loads of questions.
1) Why wasn't I told about this?
2) If I don't have MS, what do I have?
3) Why aren't I being treated for 'not MS'?
4) Will my friends and family think I am making up symptoms?
Hi everyone,
Hope you're all ok.
I have a problem and Im now sure why but i think its got something to do with the tolteradol Im on for my bladder. I was feeling the need too often and they gave me this.
I've. been on it a couple of months now and the horrid feeling doesn't bother me much now and i sleep well.
The problem is, i am now feeling like Im leaking urine and i have a vaginal discharge that is contributing to this feeling so be honest i dont know if Im leaking or its heavy discharge but i feel very very disgusting.
Do you think it IS the medication because Im wondering if the dose could be reduced and still be effective?
Dont know if this constant feeling of leaking is worse than constantly needing to pee.
Im also frightened that Im about to lose control of my bladder altogether.
I've now just had to call nhs direct cos of palpitations. I've had them for three nights now, they start about 7pm and continue until i go to sleep. I think these are linked to the tablets too.
Thanks for reading.
HI all im feeling really scared :0( Today has been not a good day at all think i might of over done it yesterday both arms are so weak can not grip much and in both arms i normaly only have trouble with my left hand i have had shooting pains in my arms etc but what has scared me is for about 25 minutes earlier i devoloped a bad bad stutter my words where not coming out as they should i was getting all mixed up and had to really concentrate on what i was saying to make it come out right i have had problems word finding before but not like this and it has really scared me whats happening ????
Thanks Tracy :0(
I had my neuro meeting and then had my mrion wednesday. When I met my neuro he said if nothing turns up on mri i won't hear from him. Thats ok by me. But how long should i wait before going to my doctor?
Had a really bad weekend. I went out friday and when i got home i had this really sore pressure on my ribs, I've had it before but never like this and not for so long that i actually had forgot about it, this was really sore though and felt like both sides of my ribs were caving in, it could be drink though but if i'm honest I was drunk but not that drunk. Then on sunday I got a pain in my really lower abdomin, i've had it before but again nowhere near as bad or for as long. It was so bad I took painkillers for the first time since i dont know when. (i really feel bad saying that, i know that sounds like such a crappy thing to complain about on this forum) too put in context my dad was addicted to co-codomol. unless a doctor tells me to take painkillers i don't. It was also nearer a bad place than an ibs place, i know i shouldn't but i find this a bit embarressing. I've said to my gp about it before and apart from the fact i think he thinks its ibs, i was told not to worry. except i had nothing to upset my bowel. and as I said it felt a lot lower. (which could be cool, but was a bit to close for my liking)
And tonight two of my fingers felt tingly and if i'm honest I can't feel my pinky now.
Hardly the worst I know.
After my consult i was so stressed, tired, pre-occupyed with all the other stuff going on that i just couldn't be bothered but now I want to know. So I guess I'm asking how long does it take for the results to come through?
PS: (how do i get a copy of my brain mri? for no other reason than I want a picture of my brain, i know its nhs resources time ect and all that but i still want it, i'm interested)
sorry if this seems like a rant but its one of those days lol
this may seem like a really stupid question to ask. . . .
but how do you all cope on a day to day basis?
I know some of you are married and have families ect, but how do you cope with not being able to do stuff, what happens when the grass needs cutting and you cant push the dam mower but there isnt anyone esle to do it? or the curtain rale falls down and there is no one to help you put it back up?
I have been really trying hard to get a grip of my life, whether it MS or orther, my days are filled with pain and fitigue and what feel like the onset of dimentia, but I am tryin to do the whole positive thing.
but over the last few days I have begun to realise that I am on my own, yes I have kids and family but they dont help in anyway, they just tell me to leave the jobs till I feel better, then, when I'm cured, I can sort out the jungle in the back and fix the shelves that are falling down, and clean the cooker out, and fix my bed.
I am on my own, which is fine, I can cope with that, but how do I get stuff done or do I just learn not to give a shit?
how do you do it? how do you not get totaly frustrated by the fact that these things need to be done and you cant?
xx x x x x x
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