Hi all
I have been diagnosed with MS for 18 months (remitting relapsing) and the last five weeks I have had muscle twitching! This has me really worried about motor neurone disease!! Seeing neurologist in 3 weeks!! Seen 4 different drs and they have tried to reassure me but it hasn't!! They all said it would be highly rare. Spoke to ms nurse and also said it would be extremely rare. Does anyone else have twitches. Grateful for any replies
Hi All,
I have had SPMS for some 15 years, with the main problem being mobility, with occasional (usually) night-time spasms (big toes bending upwards, nearly always right foot) whilst this used to be more annoying than anything else, it has got worse over the last few weeks and can last for over 3 hours at a time. It is now having a devastating impact on my routine, and I would love to hear any tips or advice from members on coping techniques.
I currently take up to 8 Baclofen daily, which I do think are effective any more, and am currently on a trial for Sativex- but this does not seem to touch an aggressive episode like last night, even a Diazepam on top didn't help
I have tried Gabapentin but had a bad reaction, and although usually effective, I don't want to become reliant on Diazepam.
Any help massively appreciated.
Regards
Mark
Good afternoon everyone.
I started on my copaxone last August and have felt so well since I wished I had done it earlier. At my previous rate I should have had two relapses since then but I am relapse free and life feels good
But, I am getting increasing pain in both legs and, sometimes my arms. The muscles feel weak and without strength - for example when I was doing my daughter's hair the other day I had to keep lowering my arms due to pain. My walking is now affected and the muscles hurt at rest. They are particularly bad when I first wake up.
They feel stuff and achy but not really "spastic" if you know what I mean. The MS nurse suggested baclofen and my GP has prescribed it but I wondered if anyone had had similar symptoms to these and if the baclofen (or anything else) worked.
Any words of wisdom would he gratefully received.
Thanks, Sam
Hello guys, quick question. I keep getting foot pain in my left foot (arch of foot and down sides). It comes on periodically and after activity (decorating and Xmas shopping to date). My toes are also weird in just my left foot. The toes no longer match my right foot and and higgly-de-piggle-de all the time. Am I experiencing spasms? I don't necessarily have the foot pain all the time, but my toes are always weird. The pain can cause me to limp a little, but nothing major. I don't believe I've injured my foot and it's not tender to touch. Any ideas much appreciated! Thanks :-)
I keep getting spasms in my legs, which is often accompanied by a strong burning sensation in my feet. I don't see my neuro for another month. Is there anything I can buy or ask my gp to prescribe me to help with these symptoms? Has anyone else got experience dealing with these things? After 10 or so spasms one after the other it starts to get painful :( feeling rather fed up of this :(
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