RR MS for 19 years, 3 relapses in last 12 months on avonex, 2 new lesions on MRI so bloods taken today for jc virus and tysabri due to start later this month. Looking for some feedback from anyone else on tysabri
I started tysabri in March, after my first infusion i was very nauseous for 24hours and was actually sick the next day. Thought it might be a bug, not the tysabri itself. Had my second infusion last week and felt the nausea again but no vomiting.
I have spoken to my nurse about it who thinks im one of those awkward people that are very sensitive to drugs! She suggested we try an anti-sickness med prior to the infusion.
Im just wondering if any other tysabrians have had a similiar side effect, and if so did it ease up after a few months?
Hi hope all are as well as can be,im still having problems with blood results,it now could be down to the baclofin i take? so ive to wean myself down to 30ml instead of 50ml,and been prescribed amitripline aswell, ive been having severe cramp pains in my legs which have reduced me to tears,my legs seem to be gettin stiffer as the day goes on they are hoping to get me back on daily gilenya again as im still alternate days,the warm weather or i should say the humidity has had me a wreck,ive also mentioned to my nurse yesterday that ive been having hot sensations on my back up towards my neck and sometimes down towards my hips? she said to keep i on this she at first thort shingles but it never lasts all day so mabe not, i really hope not as that doesnt sound very nice take care will keep updates xx
Got my result when the nurse called to tell me, she suggested I think it over for a few days but I got her to book me for my first infusion instantly, it will be on the 25th July.
I am frightened, never been on any kind of ms drug before, but I am so very desperate to be a proper mummy.
I feel like I'm in some alternate existence and it's not nice.
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